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Roy | | Person with diabetesBorn in Coalville in 1925. Diagnosed Type 1 in Leicester Royal Infirmary in 1942
Overview: When Roy was diagnosed with diabetes at the age of 17, he was admitted to Leicester Royal Infirmary for a month. He remembers learning about injections and urine testing but can`t remember any guidance about diet, apart from advice to cut out all sugar. He would like to have joined the forces during the Second World War, but failed his medical examination. According to his wife, he has had many serious hypos ever since he was diagnosed. He began to lose his sight in 1972 and now only has very slight vision in one eye.
There is also an interview with Roy`s wife, Madge.
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| Transcript... |
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| (1) Tell me about your background
| (1) Tell me about your background.
Well, I was born
in Ravenstone, near Coalville, in the mining area. Then we - when I was about, I believe it was
six years old - we moved to Barrow on Soar, and my father then worked in the
concrete works, just across the road from where we lived. My mother was born in Peggs Green. Her father and mother were both in the
colliery, at the time, and, after I was born, as I say, we moved to Barrow on
Soar. My father went to work in the
concrete work, which was across the road. My mother, she looked after us: me and me sister. And then, when I started work, I went in the
shoe factory at Sileby.
What did you do
in the shoe factory?
I was in the
press room, sorting the soles and the insoles, then we passed them on... they
passed on round the factory to be... They
were ladies‘ shoes. After that, I went
to work in the service department of the Royal Ordnance factory, which was then
in
Broome Lane,
Rearsby.
Can you tell me
about when you were diagnosed with diabetes?
Ah, well, in
1942, in March ‘42, I was drinking a lot of water and passing a lot of urine,
also losing weight. I went to see Dr
Gray at Barrow on Soar, and he sent me to Leicester Royal Infirmary, where they
said that I‘d got this - is it A1 diabetes, i‘nt it? - which needed
insulin. So, I was put into the Langham
ward at LRI for a month, to get stabilised. After that, when I came out, I went to live with my Aunt Liz - Ashby
Road, Coalville - and I stayed with her for three and a half years.
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| | (2) Can you tell me what happened while you were
in Leicester Royal Infirmary?
There‘s only one
thing I can remember. The first meal
they bought me was a big plateful of dried minced meat. It was bloody terrible! I only had a little bit of it, and after that
they gave me basic vegetables with a little potato, because of carbohydrate.
Can you remember
anything about your insulin injections?
Well, they
injected me while I was in the infirmary for the month, and then, when I came
out, the syringe were about five mile long, and the needle were a bit bigger,
you know.
Who taught you
to inject yourself?
Me cousin,
Elsie, she injected me, when I moved to me Aunt Liz‘s, for... till I got used
to the needles, and then I injected myself.
Can you remember
how your cousin learnt to inject?
Well, she
injected just here, but I swapped, because I had so much in the morning and so
much in the evening, you know, to last overnight. Then I moved from off my arms into the groin,
in me legs.
Why did you move
the site of injection?
Well, because you
get lumps. The lumps form wherever you‘re
doing it, that‘s why I moved about... you move it around your body. Now, what I do now, on this new stuff, is
inject it in the stomach.
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| | (3) What did you learn, while you were in hospital,
about testing your sugar levels?
Well, while I
was there, they did it; the nurses did it, you know. I had to learn it when I came out. Used to have little strips in a tube, for
testing your urine.
Can you remember
who taught you how to do that?
I taught myself. You just got the supply of the stuff, and you
had to do it yourself. I mean, the stuff
that they give you, it had got instruction leaflets on the way to do it, you
know.
So, they didn‘t
send a district nurse out to help you?
No, never had a
district nurse, no.
So, there was
nobody, then, to teach your cousin how to inject you?
No, not at
all. You got the leaflets telling you
how much insulin to put in the syringe, and how to stick it in your arm. That was all. There was no other instruction whatsoever. You taught yourself as you went along, you
know.
Can you remember
if your diet changed?
Well, you
regulated your diet by the colour of the urine, as you tested yourself morning
and night, before you went to work, and when you come back, before your evening
meal.
What did you
eat?
I‘ve always
liked my food, but I literally cut out all sugar, chocolate, anything that
contained any amount of sugar. Now I
have, in the morning, I have one Weetabix, no sugar. I put warm water in the Weetabix and a little
milk, and I have a couple of rounds of bread and margarine, and a cup of
tea. Lunchtime: I shall have a couple of
rounds of bread and margarine, with perhaps a little cooked meat, and the wife
does the evening meal, which is mostly vegetables, a few potatoes, and the
cooked… the meat. But no sweet, we don‘t
have a dessert.
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| | (4) And is that what you ate when you were first
diagnosed as well?
Yes, near
enough.
Can you remember
being told anything about measuring carbohydrate?
No, we just know
that carbohydrate was potatoes. Of course,
there‘s carbohydrate in bread, isn‘t there, yes.
So, did you
measure your potatoes?
Well, no, not
really. I don‘t have a lot.
When you were
first diagnosed, were you given any scales to measure food?
No, nowtsoever,
no scales at all.
So, how did you
know how much carbohydrate you could eat?
Well, I used to
go to Leicester Royal Infirmary perhaps every three months, and they‘d tell me
how I was balanced. I never got no instruction
about it - at least I can‘t remember any.
Can you remember
what happened at the three monthly visits to Leicester Royal Infirmary?
Well, they‘d
take a urine sample there, they‘d test it, and then they‘d tell you if it was
too high or normal, you see. All you
did, it was a little strip, you put it in the urine and it recorded it. If it was red, you wanted some more insulin,
you know, because your blood sugar was too high. But I can‘t remember any instructions as to
the amount of food I was supposed to eat.
So, the reaction,
always, to high levels was more insulin?
Oh yes, definitely.
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| | (5) What was it like to cope with diabetes after
you came out of hospital?
Well, it was
rather difficult. I mean, you went to
the doctor, and they gave you this and they gave you that, but really, it was…
when you were at work, it was very difficult. You‘d got to keep everything more or less to a minimum, otherwise you
keel over. I have keeled over at work,
yes. When I lived at my Aunt Sorrel‘s, driving
the truck, and I felt dicky, and the next thing I know, I were gone. When I come round, Dr Sheriff had come from
Barrow on Soar, and he gave me a shot in the arm to bring me round. I‘ve keeled over once or twice - well, keeled
over twice, while at work. I‘ve done it
here, when the wife‘s been out at work. They‘ve fetched her from work, because I blacked out.
When you first
had diabetes, how did people at work react?
Well, as a
matter of fact, I never told them. I
just got a job and went to work, and that was it. I never told them I was diabetic. Should I have done?
Why didn‘t you?
Well, it never
occurred to me. I just went to work
normally. Well, as a matter of fact,
I‘ve never mentioned it to anyone, really. Well, I suppose I don‘t like to say I‘m a diabetic.
Why not?
It‘s just the
thought of it, the… I suppose, you don‘t just go round and say "Hello",
shouting "I‘m a diabetic" you know, do you? Well, it never occurred to me.
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| | (6) How did diabetes affect your social life?
Well, not much,
really, at all, except when I felt ill, and, of course, then I lost a lot of
time from work, when I was feeling really ill and the diabetes was getting on
top of me. But really, the social life,
it never hardly affected me at all.
Did you tell
your friends?
Well, I told my
bosses when I went to work for them, and I told John, didn‘t I? John Nurse. That‘s about all.
You were
diagnosed in 1942, in the middle of the Second World War. Can you remember what it was like to have
diabetes in war-time?
I got extra
rations. What, exactly, I got, I don‘t
know.
What about
joining up?
I couldn‘t join,
because I failed me test to join; the examination. Being that I‘d got diabetes, I asked them if
I could go in the medical corps, and join that, being as the medicine were
there. But I got a group four, and that
was it.
What was a group
four?
Well, more or
less, you‘re exempt; you‘re not fit.
Were you
disappointed?
Well, of course,
definitely. I should have loved to have
gone, but it wasn‘t to be.
So, what are
your main memories of having diabetes, before you met your wife?
I suppose I had
hypo… is it hypoglycaemia, or summat? I
don‘t know, hypo... I monitored the
insulin with the reading on the urine tape. If it was high, I administered a little more insulin, and if it was down
low, which was then yellow, I lowered the insulin. I monitored it like that, through the war,
and up until when I met the wife.
And from there,
we‘ll let her take up the story.
Roy |
| | style=‘color:red‘>’s wife, Madge (86) takes up the story.
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