|
TranscRipt
|
|
|
|
Here you can read through
the whole transcript for this interview. Click on the listen icon to hear any of the tracks.
You can search on this transcript by clicking
[here]
for the research tool. Alternatively you can
download the full transcript [here]
Irene Bainbridge | | General PractitionerBorn in Florence in 1935.
Overview: Irene Bainbridge trained in medicine at Oxford University from 1953 to 1960 and became a full-time mother from 1961 to 1974. When she returned to work, she found much had changed, especially in diabetes care. After further training, she became a GP from 1978 to 2000 in a rural dispensing practice in Essex, twenty miles from the nearest hospital. The practice appointed a Diabetes Specialist Nurse in the late 1980s. At the time of interview, she was still doing sessional work in general practice and was editorial adviser to the journal, ‘Dispensing Doctor`. | [View Full Interview] |
| Transcript... |
|
68
| (1) Tell me about your background.
I was born in
Florence, in
Italy
, in 1935. My parents... my father came from
Poland
- via
Palestine,
as it then was - because there was no future for Jews in
Poland
, at that time. And he worked on the land, and founded kibbutzim;
got malaria, typhoid. Then he heard that
Mussolini was offering free education to all, and so he took a boat - with his
little hat, and a few notes inside it - and came to
Italy
,
via
Naples,
speaking Latin, not Italian. In
Palestine, he had been
speaking Biblical Hebrew, rather than modern. And he went to
Florence,
and he joined quite a sizable group of Polish, Jewish young people, who had
come to study there, which is a very interesting group, actually. And he met my mother there. And she came from Gorizia, which is in
northern... north eastern
Italy
. And it‘s always been a frontier town, and
they always joked that they were both born in the Austro-Hungarian Empire, so
their education was very similar. And
the language they had in common, apart from Italian, was German, because they
had all had to learn German at school, and quite a lot of the customs of
Franz-Josef and the Empire. And anyway,
in that background, my brother and I were born in
Florence. And we had a very happy time there, until suddenly, 1938, the racial
laws were announced: Mussolini had joined Hitler, and all Jews were dismissed
from government; I suppose they were government posts, university posts. My father had risen very rapidly to a Chair
in organic chemistry, under Professor… he had studied with Professor Angeli,
who was a very distinguished organic chemist, at the time. So, having to leave
Italy
: he saw, instantly, that the
writing was on the wall, and that we should leave - all of us. And he came to
England
, hoping that, perhaps, he
could get to the States. But when he got
here, the people he had met - various academics - asked him to stay, and he
sent for us. And that was the start of
our childhood here, in
England
. And my brother and I quickly became very
English. I learnt English from him, and
we brought English home, and taught our parents how to speak English properly -
as it should be spoke!
| (2) How old were you when you came to
England
?
I was three and
a half; my brother was six and a half. And
we... I remember a very awkward occasion
in a nursery school, when I couldn‘t speak a word of English, and couldn‘t even
ask to go to the toilet, and I won‘t tell you what happened! I was glad to get home, and vowed never to go
there again. But later on, we soon
joined in with everything that was going on. And we were bombed out, in
London. My father was interned on the
Isle of Man, along with enemy aliens. That‘s a whole chapter in itself. And then we moved to
Manchester, where the bombing was equally
fierce. But with the help of the - I
don‘t know if you want to hear about this - the Morrison shelter, the table
shelters. We had a huge one, which
occupied our living room, and it was covered with a blanket. And we did our homework there, we played on
it, we slept underneath it, we hid there during air raids. It was a wonderful thing. And those were the war years we spent up
there, not really aware of what was happening to my father‘s family. We sensed a lot of anxiety, but he tried not
to let it spill over on to us. It was -
now, looking back - I think it was quite marvellous that we didn‘t get to feel
these anxieties, these horrors that were going on, until afterwards. We understood, afterwards, why he was so ill
at the end of the war, when he knew that they had all perished.
Tell me about
your secondary education.
Well, I got a
scholarship to
Bury
Grammar School for Girls,
which was a lovely school in a mill town. And it was a marvellous time, there. And I loved sport, and I was games captain, and played everything - mainly
tennis – and I did a lot of tournament tennis.
When did your
interest in medicine develop?
My brother
entered medical school. And all along,
my father thought that girls should have a sheltered life, and said "don‘t
worry about your exams. If necessary,
you can just go to the... just do some botany, or something to do with sewing
and cooking"; domestic occupations! But they could see that I wasn‘t going to do that, and I decided I would
do what my brother had done. And also,
my father‘s brother was a doctor - a radiotherapist - who had studied in
Florence, also, and he was
now a radiotherapist in this country. And so, medicine seemed a good choice. I was interested in the biological sciences. Not very good a physics! My brother got me through that, and my father
helped me with the chemistry, and I just took to medical course. And I hadn‘t even applied to St Hilda‘s. I was going to go to
Manchester
University,
but the Dean said that I was too young, and I would have to apply the following
year. And the following year, my brother
suggested I should apply to St Hilda‘s, and I did. And so, to my surprise - because there were
not many people going from northern schools, at that time - I got a place. And I was very happy with that.
|
| | (3) Tell me about the medical course at
Oxford.
The medical
training at
Oxford
was excellent, I can say. I can say
that, looking back now, how wonderfully it prepared me for what came
later. And we had some marvellous
teachers; some very eminent. We probably
didn‘t realise, at the time, quite how eminent they were. There was Le Gros Clark, Alice Stewart, Honor
Smith. Should I tell you what their
specialties were? I mean, Le Gros Clark
was the anatomist; Alice Stewart was a dermatologist, who drilled us in anatomy;
Honor Smith did a lot of work in TB meningitis in children. Sir George Pickering - later Sir George -
Professor Pickering had just come from St Mary‘s, with his retinue, and we were
his first students at the Radcliffe Infirmary in
Oxford. And that was a great privilege, and it was great fun too. And we used to have seminars at his
home. He often took to his bed, because
he suffered from gout, and we would gather round his bedside, and have our tutorials
there; just three or four of us, a little group. It was very intimate, really. And his wife, Carola, was very
welcoming. That was
Norham
Gardens;
13
Norham
Gardens. David Pyke was our medical tutor, and he instilled in us the need always
to examine the patient. "Always
undress the patient and examine them. You
don‘t know what you‘ll find, until you look". Harold Ellis was the surgical tutor - later
Sir Harold Ellis - and he was very witty. And the thing that we remember most about his sessions was "always
empty your bladder before you start on a surgical emergency, because you may
not have time, again, for several hours to do that"! And that‘s always stayed with me. And Sam Corrie was the surgeon I worked for
in my first house job. And he was very
kind to us. I should mention that I met
my husband in the clinical course. He
came from
Cambridge,
where they didn‘t have a clinical school, at the time. And so, he was one of the outsiders. But we were a very small group. I think there were eight of us in the intake
to the
Radcliffe
Medical
School
- that was 1958 - and, of those, there were two women and six men. And that was approximately the ratio; perhaps
less in some intakes. There were two
intakes in the year, making sixteen altogether, at that time. So, we were very, very privileged to have the
teachers to ourselves, pretty well, and we did a lot of hands-on medicine, at a
very early stage.
|
| | (4) Can you remember what you‘d learnt about
diabetes, before you began the hands-on medicine?
During the
pre-clinical course, diabetes was part of the biochemistry. And, of course, we had Sir Hans Krebs, of the
Krebs cycle, who would just talk to us, and listen to our views. And, over a cup of coffee, we would share
ideas about the cycle, and about metabolism, and we would talk about
diabetes. And it was a metabolic
disease, in our eyes, at that time. And
then, as we came into the medical school, and did the clinical work, and
actually saw patients who had diabetes, we realised what widespread
implications it had, for their families, and in their lives, generally. That was the big impact of clinical medicine:
actually seeing, in real life, what the theory was all about.
Can you remember
what the orthodoxies were, regarding treatment, at that time? We‘re talking, as you said, 1958.
Not very much,
actually. Just... there was insulin, and
there was treatment with diet, and maybe there were some tablets. I don‘t remember much about tablet form of
treatment.
Were you talking
about Type 1 and Type 2, or not?
No, we were
not. It was rather strange, really. Diet seemed to feature very largely, though,
in those days. And I remember the
feeling that patients felt they had, in a way, brought it on themselves, by
eating the wrong foods, and having too much sugar and carbohydrate. And they had to cut this out, very severely,
from their diet. So, dietitians were
very, very important people. And that
was... And the insulin injections were
very difficult. And when there was some
kind of crisis, and the patients were admitted to hospital, they stayed in for
a very, very long time. I mean, they‘d
stay in for weeks and months, really. I
remember some patients, on our first clinical firm, who were there throughout
the six months that we were there. And I
can‘t really say why they were in so long, but that was the way it was
done. And stabilising diabetics must
have been exceedingly difficult, because they were pretty well in bed, most of
the time. In fact, everybody was in bed;
I don‘t remember people sitting out of bed, even. I don‘t know whether deep vein thrombosis was
a big problem. I know pulmonary embolism
was. As Dr Rob Smith - who was the
pathologist, at the time - pointed out, that in the temple of ultimate truth,
we discovered what pathological processes had actually been taking place.
|
| | (5) So, that was what I remember about diabetic
care. Dr Cook was the specialist, who
was particularly interested... A very
kind man; he was very kind to patients, and to students. And everybody looked forward to having
sessions with him, or to being on his firm. I did do a locum on his firm, one time. But he did see general medical patients, but his special interest was in
diabetes. But I‘m afraid I don‘t
remember very much about how it was managed, apart from these big crises that
occurred every now and then.
Can you remember
how glucose was monitored?
It was, as far
as I can remember, it was entirely venous blood samples. And certainly, patients didn‘t check their
blood sugars at all, but they did a lot of urine testing.
You mentioned
that some of the patients felt that it was their fault they‘d got
diabetes. What were the attitudes among
medical staff?
Certainly, as a
student, one got some very definite impressions of the attitudes of our teachers
to patients and their diseases, which varied to a certain extent. But there were certain things that were
fairly common, I think, such as, perhaps, emphasising the - I suppose we still
do it now - emphasising that people‘s lifestyle does have some connection with
the illnesses that they‘re suffering. Not always, of course, but this came over very much, then. And that would be the case with diabetes, and
with obesity, and obesity-related conditions.
|
| | (6) And then, how much you told the patient: that
was another thing. This particularly showed
up in the surgical specialties, where patients would need to have explanations
of why they needed an operation, or some medical intervention. And I remember we felt that we shouldn‘t tell
the patients too much. One had to speak
to, perhaps, a relative - a responsible relative - but not tell the
patient. And that was rather strange,
and it did seem strange to us, as well. And sometimes, there were some very nasty things that had to be told. But, on the whole, the patients were shielded
from these, and perhaps a wife, or a husband, a spouse, a parent - somebody
else - would be told. And then they had
the task of dealing with it, and somehow transmitting to the patient what they
had to do, but not actually worrying them with a bad prognosis, and such things,
and trying to answer patients‘ questions. But patients didn‘t seem to ask questions, then. They didn‘t seem to feel that it was their
place to ask. They were afraid to ask,
perhaps. But one or two of our teachers
did have a rather brutal approach, and perhaps it was a reaction to this not
telling the patient. They obviously felt
that the patient should know, but they didn‘t know how to transmit the
information, and would say "I‘m afraid you‘ve got cancer of the bowel, and
you‘ve only got a few months to live". And that would be it. And we
thought that was quite dreadful, but that was the way, at the time. Others, perhaps, put it in a slightly
different way, but I remember we were… we often had discussions about this,
among ourselves, and thought it was really not something we were happy about at
all.
Do you think
that patients with diabetes would have been warned about the possibility of
future complications?
I‘m not quite
sure that the whole range of future complications was realised, at that
time. I certainly don‘t remember
patients being warned that... about the extreme seriousness in the long-term. They would be told that they might have
short-term complications, or they might have diabetic coma, or hypoglycaemia;
they would be warned about those. But I
don‘t remember fundal examination, at all, or neurological examinations.
Can you remember
any chiropodist being around or any eye examinations taking place?
If there were,
I’m afraid I don’t remember if there were.
|
| | (7) Any more memories of the wards in the 1950s?
Oh, yes. I mean, on the whole, they were - in the
Radcliffe - they were long wards, with about twenty or thirty patients, beds
side by side, surrounded by curtains, which made privacy extremely
difficult. And when taking, as we did,
clerking patients, if they were slightly deaf, we would have to shout the
questions. And some of them had these
big ear trumpets that we would have to shout into. And all the surrounding patients would be
absolutely laughing their heads off at some of the questions, if they were well
enough to laugh. We were very
embarrassed, of course. And the sister
ruled, in the ward. The sister of every
ward was an extremely important person. She knew everything that needed to be known about the patients. She would tell us if we could come in, or
not, and so on. It was very important to
get ‘in‘ with the sister, in the ward! Then there were the ward rounds - the grand rounds, as they were called,
and probably still are, in some of the big teaching hospitals. But they certainly don‘t take that form in
outlying hospitals - which do quite a lot of teaching, nowadays - as in our
local hospitals, here - district hospitals - in Colchester and
Cambridge. And they were very formal. There were large numbers of people - perhaps
even fifteen, twenty people - surrounding the bed, with the senior surgeon or
physician taking the round, and putting all the little medical students on the
spot with difficult questions about the history and diagnosis, treatment. And the patient would lie there, being talked
about, and would simply just keep quiet, and would hardly be referred to at
all, in person, as if they were just a lump of lead! It did strike us as very odd, really, and not
something that we really felt was the way we would want to conduct our
relationships with the patients. But
that was the way… the example we were given, and I‘m afraid it probably did
colour a lot of people‘s attitudes and behaviour for quite a long time.
You mean the
students‘ attitudes and behaviour?
Yes, after they
became doctors, and seniors themselves. It probably took quite a while - several... maybe a generation of
doctors - before things changed, I think.
|
| | (8) Also, as part of the teaching, we had lecture
demonstrations, in which a patient would be brought - wheeled - in, in their
bed, into one of the large lecture theatres, in front of about fifty or sixty
assorted medical students, consultants, housemen, et cetera. And a student… we would have turns at
presenting a case - presenting the patient‘s case - and discussing it, and
answering questions about what was going on. A very daunting experience for anybody, and not a very pleasant
experience for the patient, I should imagine. The one that springs to mind - the demonstration - which took place
every week, was called the Wittery. And
it was organised by Professor Witts, and his team. And one would have to prepare for this, and
you always knew your turn was coming, and you hoped that they would be
merciful. Another strong recollection
that we have... I say we, because I‘m
talking about myself and Douglas, who was a medical student on the firm at the
time, and later became my husband. We still
laugh about it now. It was in an obstetric
ward round, when Professor Chaser-Moir was demonstrating something with a
pregnant lady, who was in bed. And he
wanted to elicit her plantar reflexes, but she insisted on keeping her feet plantar
flexed, because I think she felt it looked a bit better. And he got quite annoyed, and he said
"don‘t point your toes at me, woman!"
And any more
memories of the outpatient clinics in the 1950s?
Most of the
outpatient clinics we attended were in the afternoons, when we were
experiencing postprandial lows. And I
remember sitting and waiting a lot, and I think the patients sat and waited
even more. And the waiting halls were
crowded. There were people sitting on
benches all around. I don‘t know how the
appointment systems worked. There must
have been an appointment system, but teaching obviously took up some time. And... Actually, we did get to examine patients, to see them in the cubicles,
but it was all a bit chaotic. And very
often, they were held... patients were
being reviewed by junior staff, whom they hadn‘t seen before, and did complain
quite a bit about it to us medical students. They often unburdened themselves to us, where they wouldn‘t, perhaps, to
anybody else. And they felt that they were
seeing a different person each time, and that they had to repeat their history,
and that the notes were missing. I don‘t
think anything much has changed.
|
| | (9) What did you do when your training ended?
Then I... then
it was time for house jobs. And I did a
surgical house job, in which we had a one in two rota, which meant that we
would be up for the best part of the night in theatre, and seeing emergencies,
and having to work the whole of the next day. That was quite the usual thing. Because it was a one in two rota, there was just the chance for catching
up on sleep one night. But most of the
jobs were actually single people - one person - doing the house job, and no
chance of any respite at all. Occasionally, one might be able to get somebody to cover, but that was
quite rare, and quite difficult, because, well, it was very difficult for
somebody to cover for neurology, if they were doing ENT. This did happen, but rather reluctantly, but
only, really, just to keep one sane. So,
it was a very punishing rota. Also, the
living conditions were quite appalling, by today‘s standards. I don‘t think anybody would put up with it,
now. But a lot of us had really very
dingy rooms, with maybe a broken chair, a table lamp that didn‘t work. None of the mod cons of modern living at
all. Shared bathrooms, perhaps on a
different floor. And as for married
doctors doing house jobs: it really was frowned on. And we had married, just before starting
house jobs. And I remember what a fuss
there was about having a double bed in one of the housemen‘s rooms. And this had to go through administration,
and there were meetings about it, and we only managed to get it done with the
support of Mr Corrie, my surgical chief, who said it was all utter
nonsense. But that was the state of
affairs. And others, who had spouses who
came into the housemen‘s rooms, would stay part of the night, and then they
would leave in the morning before the cleaners came in, so that this shouldn‘t
be generally known, because there might be trouble if it came out. They really had to slink out of the
buildings.
|
| | (10) What did you do next?
Well, we were
married in 1960, and our first child, Simon, arrived in 1961. And then
Douglas
had house jobs in
Southampton, so we moved
there. And he had to be on call five
nights on the trot. And so, all I
remember was that he would just come home, at the end of five nights, and
sleep, solidly, before his next turn of duty, after one day. Then he‘d be doing another five nights. So, that was a short spell in
Southampton. Then
we moved to Mill Hill, and we had two more children. And during that time, I was really... would
have liked to do some more medicine, but the opportunity just wasn‘t there,
because part-time jobs were very, very scarce. I wasn‘t fully registered. I had
done one and a half house jobs, and one had to do a surgical house job and a
medical one. So, I needed to do
that. So, I became interested in
marriage guidance, and I was selected and trained by the Marriage Guidance Council
for individual counselling, and also for educational work in schools and youth
clubs, which I loved. I was called the Sex
Lady, and went to schools and did little groups, just discussing sexual health,
sexual issues. And that was very,
very... a very interesting, fascinating time. I did that for about ten years, and that was at Barnet, Haringey and
South Herts Marriage Guidance Council. And that was a very good background, actually. I found that very useful, afterwards; the
counselling techniques.
|
| | (11) Then we moved to Hedingham, out here in
Essex, because we needed more space. My mother had come to live with us, and the
boys were getting bigger, and their friends were coming to stay. And here, we found lots of room. It took quite a bit of adjustment to country
life. But the opportunity then presented
itself for me to go back to medicine. I
had a French cousin, whose friend had a daughter who wanted to improve her
English, and did I know anybody with young children where she could learn
English, and help in the house. I
couldn‘t think of anybody, and then suddenly, I thought, what about us? And that was the start. She wasn‘t a very good au pair, but I got
going, and I joined local hospital ward rounds, and made... got myself into
some of the medical events in this area. And it was a time when they were seeking to recruit women, who had been
wasted, to medicine. So, really, I was
very fortunate to start coming back in at that time, and I jumped onto that
bandwagon, and managed to get a supernumerary post arranged - with some
difficulty; it wasn‘t easy. But,
however, I had a very supportive family, and quite a lot of support from local
consultants, who had seen me appearing regularly on ward rounds. And I got the job in
Broomfield
Hospital,
and it went on from there. I got a
series of house jobs. And it was such an
eye opener, because I became aware of the huge changes that had taken place,
not only in society, but in medicine itself.
|
| | (12) After how long a gap?
That was a gap
of... what was it, from 1962 to ‘72; a gap of ten years. And my goodness, it… People asked me: how did I manage to deal
with the medicine, the changes that had taken place in the medicine. The medicine, itself, was not difficult,
because, somehow, I found that the training, the basic training that we‘d had
at the Radcliffe, was so good that, if one really stuck to taking a good
detailed history, and doing a proper physical examination, things would fall
into place. Treatments had changed, but
one could quickly pick up on the ways that diseases, conditions, were managed. But the actual length of stay in hospital,
and attitudes, had changed radically. And people were whizzing in and out of hospital. They‘d stay in for a few days, have tests
done, sort things out, start on treatment, and off they went. And particularly for diabetes, this was very,
very important. It was clear that it was
much preferable to stabilise a patient in their normal working conditions, and
their living conditions, than to do it while they were lying in bed, doing
nothing. And also, the part that they
could play in the management of their condition had changed, and there were
blood monitors they could take home and check their blood sugars. And the emphasis on urine testing diminished
rapidly. It was still being done, at
that time, but I‘ve seen it gradually phased out, over the past twenty years or
so. I‘m not sure at what point the blood
monitors came in, but they certainly were doing some finger-prick testing - at
least by the nurses, if not taking over the testing themselves. So, that was very interesting. And the sliding scales were very much used,
where the insulin levels would be adjusted according to the blood sugar levels,
over the first few days after admission in some kind of crisis. And then the final fine-tuning would be done
at home, during normal life.
|
| | (13) Now, on reflection, you think that the gap
away from medicine was a little longer than you said?
Yes, I‘ve
probably got the years a bit garbled. ‘61 was the birth of our first child, and I had stopped working at that
stage. And then I was out of medicine
until after we got to Hedingham, and our au pair was installed. And that was 1974, when I started going on
the ward rounds.
So, we‘re
talking about a period of thirteen years away from medicine, and those were
quite crucial years of change. What
other changes do you remember?
They were,
obviously, crucial years. And I wasn‘t
even reading medical journals during that time. I didn‘t have time, apart from anything
else. So, when I was doing the house
jobs, I really did take the plunge. But
it was all extremely interesting, and didn‘t seem difficult, somehow. And with the diabetic care, particularly, I
mentioned that the patients were stabilised during activity; they weren‘t in
bed any more. I should say - emphasise that
- that, really, bed was considered a very dangerous place to be, because the
connection with deep vein thrombosis had been firmly made. And so, patients had to drift around, and
walk about, and spend their time in the day room, and in the corridors. And they were simply not allowed to sit still
for more than five minutes. They were
kept on the move all the time. So, that
made diabetics‘ stabilisation much more realistic. And then, when they went home, it changed
again, because their diet changed as well. That was the interesting thing, too, that the role of the diet changed,
too. And now, the emphasis was gradually
shifting away from the strict diabetic diets that we had known in my first
medical phase, and now was going on to more… a wider range of foods, than
previously. Though that, I‘ve seen
change again, over the past twenty years, so that now, diabetics are allowed to
eat - I say allowed - are encouraged to eat practically everything that the
rest of their families are eating.
|
| | (14) Now, the other thing was the education of
diabetic patients. They were really
drawn into their care so much more than previously, and became... were helped
to become quite knowledgeable about their condition. And there was this marvellous organisation -
the Diabetic Association - which was one of the first things they were told
about. And many would get a lot of
support from that, and learn about new methods, new techniques, or appliances
that could be used, and would sometimes be the first to come and tell us about
them, which was very, very helpful indeed. So, that was a big thing. And
then, in came the insulin pens. And… now,
that must have been in the 1980s, when I was a GP. I had my own practice, then. Yes, I got my
own practice, then, in 1978, in a village quite near where I live. And then, in general practice, you really
live with your patients, as it were. And
you see them from time to time, and they keep coming back, so that you know
what‘s happening to them. And, although
you may not tell them everything, or discuss everything the first time you see
them, there are so many opportunities to reinforce messages and to clarify
things, and patients can come back and ask questions. We appointed a Diabetic Specialist Nurse, in
the practice - way back in, I suppose, 1987, something like that - who became
so knowledgeable, really, and was seeing most of the patients soon after
diagnosis. And would have a session, and
go through a checklist with them of all the things that they should look out
for and they need to know. And they
would be reminded that they need to go to the optician, and to see the
chiropodist, and to write down and check their blood sugars. But it would be tailored, obviously, to
individuals. But we did make sure that
the patients knew quite a bit about how to manage things.
|
| | (15) Before we talk about the 1980s in any more
detail, tell me about your practice, as it was when you arrived in 1978.
I was very
fortunate to be offered a partnership in the local practice, about a mile from
my home, although it did mean that you kind of lived on the job, really, and
took work home; though, I suppose I was fortunate in being able to cut off from
work and do family things as well. The
senior partner was a delightful person, who had been in the Royal Navy. And he said that, if he hadn‘t been a doctor,
he would have liked to have been a plumber, and that plumbing was very easy
because it‘s just like Lego! Now, he
didn‘t talk a lot, and his writing was pretty well illegible - as seems to be
expected of GPs. And when I came to the
practice, patients would tell me about him, because I came with great
enthusiasm and new ideas, of course, as one does. And I would say "well, there is a
treatment for your condition, now, that we could try". And they would say "Oh no, no. Dr Veater said that I‘d never recover from
it, and that I‘d have to live with it, and so I do". And they did, and they didn‘t want to change
things. And they had adjusted to the situation
- didn‘t want to try anything new. I
learnt a lot from him, about how to manage things in general practice. It was kind of intuitive medicine. And he would tell people, he would say
"you‘re going to recover, but it‘s going to take a long time. It‘s going to take about seven
weeks". And they would say to me,
with wide eyes, "do you know that, by the sixth week, I could feel that I
was getting better? And it took exactly
seven weeks for me to get completely well". And then they would say "he saved my
life, you know? He told me that there
was something wrong with me, which I knew, but I didn‘t know, at first, whether
it was serious or not. But I could tell
from the look on his face..." And
then they would go on to say... either they would say "I could tell by the
look on his face that it was all right", or sometimes they would say
"but I could tell it was very, very serious, and very bad, because he
would get all hot and bothered, and he scribbled things very fast, and didn‘t
look at me. And I knew that it was
something bad". And then they also
said things about the certificates. "I
need a certificate, please, doctor." And when I wrote out what they were suffering from on the certificate, I
remember one young man looking at it, very critically, and saying "but I
can read this"! And I‘d say "yes...",
and he‘d say "well, when Dr Veater wrote it, you couldn‘t read what was
wrong with me". And that‘s what he
wanted!
|
| | (16) Any more memories of the practice, in the
late 1970s?
Well, it was a
rural dispensing practice, located in a village, in a sort of outbuilding
attached to the principal‘s house. And
the waiting room was a tiny space at the front; then there was a tiny office;
then the consulting room; and then a pantry at the back, which was the
dispensing area. That‘s it. Absolutely minute, the size of a garage, more
of less, the whole thing.
And just two
doctors?
And one and a
half doctor to begin with, and then we were two doctors. And dispensing in a rural area is very, very
important, because it means that it‘s a one-stop shop. The patients come, the problem is diagnosed,
and treatment can be started straight away, dispensed there and then. They go home with the medicine, and with
instructions on how to take it. And if
there are problems, they can come back and report any side effects, any
difficulties, and things can be dealt with. And, of course, the patient‘s history is known to the doctor; their
other medications. And this was a very
interesting part of the practice, and something that I hadn‘t come across
before; this very close contact with the actual medications, what they looked
like, what they felt like, and how they were to be taken. And this is particularly the case with
diabetes. I remember, because we had a
special fridge with temperature… with the thermometer, and we had to give
instructions, to the patients, on how to keep their insulin, and how to manage
their injections. At that time, there
were disposable needles. That was
another thing that had come in, in the meantime, over those years when I was
out of medicine. Everything was
disposable, then. So, that made things
much easier, too. But, of course,
special care had to be taken with disposal of the needles, and that was part of
the instruction that the patients - the diabetic patients -had.
|
| | (17) How near were you to a hospital?
Well, our
nearest district general hospital was twenty miles away. In fact, although we live - as people say -
out in the sticks, we‘re in the middle of an area which has one, two, three
general hospitals, but they‘re all at least twenty miles away. One of them is thirty miles away. So, one has, in a country practice, to deal
with things on the spot, and to have the necessary equipment. And this included carrying emergency
kits. And I had… I carried in my car -
each doctor has a different way of doing it - but I carried, in my car, little
boxes labelled in large letters, which I could read even in the middle of the
night. And there was my diabetic... There was one box which was hypos, and the
other box which was coma. And the hypo
box, initially, contained very, very large vials - twenty ml vials - of glucose
solution, and large, huge syringes. And
in the case of a hypo, one would have to be able to administer this slowly,
intravenously. Now, of course - did I
mention? - over the years, this has got smaller and smaller, and now we have a
nice tiny Glucagon injection kit, which is neatly packaged, and easy for
patients and doctors to carry about.
What was in your
coma kit?
Intravenous drip
equipment. We had to have that, really,
for all sorts of situations. So, that
was very useful to have.
|
| | (18) With this long distance to the nearest
hospital, what was the relationship between general practice and hospital
treatment?
Well, of course,
we did all our own emergency work, and so that would be twenty four hours on
call. We had a rota with another local
practice. With the long-term management,
patients would be referred to the diabetologist at the local clinic. Of course, there wasn‘t always one, but there
was usually a physician who was interested… had a special interest in
diabetes. But all the physicians would
have diabetic patients; certainly initially. And they would go for the first clinic - the first outpatients visit - and
then they would be recalled, regularly, to do checks; routine checks. I can‘t remember at what stage HbA1c came in,
as a measure of diabetic control, but it must have been early in that phase,
soon after I came into general practice. That was a new thing. And we
did... we saw the patients sporadically, in practice, about all sorts of other
things - not about their diabetes. Of
course, I mean, diabetic patients have problems just like everybody else; other
medical problems. And pregnancy was
something that we had to manage very carefully, also with the help of the
hospital. But most of the management actually
goes on at home, and in practice - in general practice. And so, we took really, special care of
diabetic pregnant women - saw them more often than the others.
|
| | (19) When do you feel that the balance shifted,
from patients going mainly to the hospital for their treatment, to mainly to
the GP?
I suppose it was
actually beginning to shift in the 1980s. And certainly, out here, in a more remote rural practice, with very poor
transport, people were really quite unwilling to go to hospital when they felt
quite well. And they thought they just
needed a check-up, and really didn‘t see the point of going all that way. And a lot of GPs were really taking quite an
interest, anyway, in progress in diabetes, and so quite a few practices were
beginning to do it themselves, and to do quite a lot of the follow-up. Certainly the education was going on, and the
dispensing, so we knew what people were needing and taking, and how they were
using it. We got very close, really,
with our diabetic patients, and this was a gradual process. Another factor was that we were diagnosing
more diabetics, and the hospitals were not really able to keep up and cope with
the increasing numbers of diabetic patients being referred. And so, they would... really, they asked us not to refer them, so
often, and could we, perhaps, see them in between times, and they would just
maybe see a patient once a year. And
that seemed a very good arrangement, because we became much more familiar,
then, with diabetic care, which was a good thing all round, for everybody. And other healthcare workers were becoming
involved in the diabetic team. There was
the local ophthalmologist who… the local optician, I beg your pardon, who would
be able to take a special training in fundoscopy, and would work hand in hand
with us, and we would have good communication. And the district nurse and the practice Diabetic Specialist Nurse, who
would go on courses and have extra training, and become very expert. The chiropodist would be part of our
team. A lot of chiropodists were working…
began to work in practices, towards the end of the 1980s. So, when the new contract came in, in 1990,
there were special inducements to practices, to encourage practices to do more,
because there are considerable resources required to do this. It‘s not something that can easily be
undertaken, without extra expense of more staff and premises. And I can‘t remember what it was - I mean, it
was very minimal, actually; very small financial inducement - but the emphasis
was there. And if there was an interest
in the practice, this was… it gave new blossoming of extra work on the subject.
|
| | (20) And I remember that we started using a
computer, round about there. And the diabetic
register was something that I was very interested in, in our practice. We were making disease registers before the
contract. In fact, the contract really
reinforced what we were already doing. And we were collecting the names - this was all on… initially, it had
been on cards, and we were transferring it gradually to the computer. And Douglas, my husband, who‘s very good with
computers, helped me to make out a kind of checklist of things that we would
want to know at each check-up, which included whether there had been any hospital
admissions during that time, and when was the last blood pressure date, and
level of last blood pressure reading, cholesterol level, and HbA1c at the last
reading, and a checklist, again, whether any neurological complications had
been identified, or fundal examination. We had it all in a very user-friendly form, so that it could be
transferred into the computer quite quickly by, not just ourselves, but by the
practice nurses. And that became -
gradually - became part of most computer practice programs, but we had already
made our own, initially, so that was quite a nice, useful tool.
|
| | (21) You mentioned that one of the things you
would want to know, for the records, was whether or not they had been admitted
to hospital, since their last visit to you. Would you not have been informed by the hospital of that?
Well, we should
have been, but I‘m afraid to say that we weren‘t always. At the most, we might get a little slip from
the admin section of the hospital ward, to say that the patient has been
discharged on such and such a day. But
that might arrive a week or two later, and, very often, the discharge letter,
as it was called, with details of the admission, would be held up. I know that they did have a lot of secretarial
problems in the hospitals, and just, somehow, the communications often broke
down, for these reasons. And the first
thing we knew that the patient was home might be that they came in for a repeat
prescription, or something that had been advised in the hospital, and started
in the hospital. And we didn‘t always
know what it was, or what dose they were supposed to be taking. And sometimes - not in the case of diabetes,
particularly - but sometimes with the - it doesn‘t happen now - but at that time,
with some of the oncology patients, who were on very new drugs that we weren‘t
familiar with at all, we didn‘t know anything about the drug, and side effects,
and dosage, and regimes. And we would
have to spend time phoning the hospitals to find out. That was really very unfortunate. And it‘s happening, I hope, less often now.
|
| | (22) Can you tell me a bit about what kinds of
patients you had with diabetes?
Yes. Some of them really seemed to stand out in
one‘s memory, somehow. I think, largely,
because... the ones, particularly, who had very nasty complications, or the
ones who were particularly difficult to control, or were in and out of hospital
a lot. And then some difficult
diagnoses. Quite a few of the elderly
diabetic patients were, for other reasons, had become housebound, and they were
really quite old, and didn‘t - when I first came into the practice - didn‘t
come to the surgery at all. We did a lot
of home visiting. I used to go... I mean, it was actually very… a privilege,
really, to see people in their homes, on their own ground, and to see how they
lived, and to be allowed to see how they lived. And they seemed to jog along. I
do remember an elderly man - a widower - in one of the cottages in one of the
outlying villages, who just sent up… sent the niece along for his
prescription. And he was always so
delighted to be told that his diabetes was well controlled. I remember how pleased… I think he considered
it was that he had done very well, that he had tried very hard, and it was partly
his success, in a way, that he... And
also, very grateful that he was being looked after, being treated, cared
for. He did extremely well. I think he lived into his nineties, and
didn‘t have any serious complications at all.
Was that non insulin-dependent?
Yes. And then, there was one patient - I could
just see his house now. He was actually
a blacksmith, and made beautiful wrought iron things, which can be admired all
round the countryside, all over
East
Anglia
. And his mother had had diabetes, there was a strong family history, and
he gradually developed... And despite very careful checking, he was
rather unstable, his diabetes was brittle. And he spent a lot of time in and out of hospital, even though he was
very conscientious with his check-ups and medication. And he developed quite a lot of complications,
but somehow survived at least… he was in his late seventies. Didn‘t do too badly, considering how many
admissions he had had. But his eyesight
had practically gone, and so he couldn‘t go on doing his work. But he went… he did a lot of dancing, instead! So, it was quite good to see how he coped
with a very difficult condition to live with.
|
| | (23) And then a very well educated lady - I think
she was a lecturer in one of the local universities - who really was, in a way,
denying her condition, and kind of pretending that there wasn‘t anything wrong
with her. But she had to have one leg
amputated, and had all the trouble with the prosthesis, and then her vision was
going. And she wasn‘t, I‘m afraid, very
good at coming for check-ups; we had to chase her a lot. And I could see why, because she didn‘t want
to know. And this was the condition with
some of the young diabetics, the very young - those diagnosed in childhood, or
in their teens. I remember two,
particularly. Her mother used to bring
her, always, to the surgery. And she was
insulin-dependent, and didn‘t want to follow any diabetic regime at all, and
wanted to do everything that her friends were doing in their teens, and go to
the youth club, and stay up late, stay out late, eat irregularly. Didn‘t always have… get home in time for her
injections. It was a bit of a disaster,
really. And then she was on the... she had been given the oral contraceptive
pill, and that was a disaster too, because she had myocardial infarction, in
her late twenties. And then a lot of
things went wrong for her, and her vision deteriorated a lot.
|
| | (24) And another adolescent, who had very
unfortunate family circumstances, was living with her father, and her mother
hardly ever saw her. And there was a
stepmother, who was very kind, but, as is often the case, the girl didn‘t
accept her. And she was leading a rather
chaotic life, too. And it took some time
before she really… things turned around, and she started realising that it was
largely in her hands; that one could only help so far, but that we did depend
on her - for her well-being - to come to see us every now and then.
How do you cope
- how did you cope - as a GP, with patients who wouldn‘t do what you told them?
Oh, a lot of
patients don‘t take advice; it‘s not unusual! And one just has to work along with the patient. I think, anyhow, you can‘t do much else. You can‘t impose conditions on people, and
you can‘t regulate their lives, but just try to point out how everything
depends on them. What happens to them
depends on - to a large extent, anyway - on how they accept advice and
help. And, mostly, they eventually seem
to come round, but sometimes it‘s a bit late. With diabetes, particularly, if the control has been wildly chaotic for
some time, I think it‘s fairly - not always the case - but I think the control
can help to mitigate the long-term effects, though I think it‘s not always
strictly related to them. Diabetes
diagnosis is interesting; the way in which patients present. Not always the classical, you know, thirst,
weight loss, et cetera. But I have in
mind one quite young, obese woman, with recurrent thrush; recurrent Candida. And she just simply could not get rid of it,
and had self-medicated for some time. And
then, there we are, lo and behold, we find she‘s diabetic. And then, the lady with a huge baby - I think
a ten pounds, two ounce, or something. A
difficult birth. Subsequent blood tests,
after delivery, showed that she had a high blood sugar, which hadn‘t been
picked up before. There was, maybe...
suddenly occurred. And then a very
frightening case of a child with sickness and diarrhoea - how many children
have sickness and diarrhoea? - and continuous vomiting. And one just has to have this threshold - low
threshold - of suspicion about, this is not necessarily a viral gastroenteritis, it could
be something else. And there we are - dipstick
test - there we are: diabetic.
|
| | (25) You mentioned the new
GPs‘ contract around 1990. Were there
any other changes in the health service that affected GPs?
Oh, huge
changes, and constant ones. The ones
that I think of particularly were fund-holding, which came in during the
1990s. I don‘t remember exactly when. It was a gradual process, actually. Some practices jumped into it, because there
were all sorts of inducements. Others
waited a while on the threshold, and then eventually took up the initiative. And I think we - our practice - I decided
that it was a good idea and that we should enter it quite early, and so, we got
organised, and appointed a fund manager. This was something that we weren‘t going to manage ourselves - we hadn‘t
got the expertise - and this chap, who had a lot of financial and
administrative experience, was going to manage the funds for a group of
practices. And we... it was an
opportunity - which was a very nice thing - for practices to group themselves
together. There was a lot of dynamics
there, and interchange of ideas, and ways of practising, which was very healthy;
it was a good development. And this
affected the way in which we related to hospital… to secondary care - GPs being
primary care - and the changes in secondary care, the ways in which secondary
care was looking after our patients, after we had referred them. And it gave us an enormous amount of control,
because we determined where the funds would go, and how we would spend the
money, and what we wanted for our patients. Which was influenced, partly, by what our patients wanted from the
health service.
|
| | (26) And we did have some very constructive
dialogue, with hospital departments, on improving their services, and what part
we could play in that. And it was partly
a case of voting with our feet, and saying to some hospital departments that
we‘ve decided not to have a contract with you for the following reasons. And that made them sit up and dust themselves
down, and shake things up, somewhat. And
we could then choose the hospitals which we thought gave the best service to our
patients, and that included, very much, diabetic care. So, we had a very good relationship, then,
established, working hand in hand - not separately as before - with our local
hospital departments.
What did that
mean, in practice, working hand in hand?
Well, in the
case of diabetes, it meant that, rather than referring all patients to the
hospital diabetic clinics, which had been overflowing and not coping, we would
now use them as a resource, for consultation with difficult cases, and for
quick consultation too. So, we had a,
pretty well, a hotline to the Diabetic Specialist Nurse, who was attached to
the diabetologist. And patients could
phone her directly, when they needed advice about how to manage a
situation. And this was excellent. And we did it in quite a lot of specialties,
but diabetes was one of the most successful. And the diabetologist was setting up a database of the district diabetic
register, which was a huge task, but very well worthwhile, because it gave an
idea, then, on the demography and the incidence, and different rates of
complications, and so on; which has been, obviously, a great research tool.
|
| | (27) And, as a rural dispensing practice, how did
your dispensing develop?
Well, doctor
dispensing has been an integral part of country life for a very, very long
time, in this country. And the benefits
to the patients are very obvious, really, because it‘s safe, it‘s instant,
there‘s a direct relationship between the diagnosis of a condition and the
provision of treatment for it. And the dispensers,
in a practice, also play an important part in the team, because they are aware
of what patients… what medication patients are taking; how often they‘re
collecting it; whether they‘re missing repeating medication; whether they‘re
having some problems with it; and whether they‘re stocking it up - that‘s
another thing. So, our general principle
is twenty eight day prescribing, because we‘ve often found that, especially
elderly patients - just out of politeness, perhaps, or habit - had been sending
for their repeat prescriptions, and just collecting them in cupboards in their
house. We know this for a fact, and the district
nurses - often to our, well, chagrin and amusement - bring back big bags full
of repeat prescriptions!
Tell me more
about the dispensing process.
Well, that‘s
very interesting, and very, obviously, very important, from several points of
view. The primary thing about it is the
convenience for patients, and the safety of the way in which it‘s done. And the - as far as the convenience is
concerned - we have systems, whereby patients can re-order their repeat
prescriptions using a written order. We
don‘t take telephone repeats, nowadays, because they can so often be garbled
and twisted in the telephone message. Then the collection of medicines, and provision for remote patients: for
a long time, we‘ve had arrangements whereby the medicines can be left at a
local store, or village Post Office. But
now, those are rapidly receding, and a lot of practices now have delivery
services, as well as collection by named representatives of the patients. And then there‘s the question of safety. Lots of things go into that. The electronic ordering of supplies, and the
bar coding checks, electronically, so that mistakes can be identified very
early in the process. Double checking,
so that every prescription is checked by two people - another person. Supervision by the doctor on the premises, so
any queries can rapidly be addressed.
|
| | (28) The training of dispensers is now a very important
issue, and we have training courses for dispensers at different levels; as in
community pharmacies, indeed. The work
is very similar, though there are some differences: particularly the knowledge
of patients of a practice. This
particularly comes into play when there‘s someone in having terminal care, and
our practice team at the desk - the front line team - know which patients are
having a particularly difficult time. And if their representatives, their carers come, they give them very
quick service, because the receptionists know, the dispensers know. And if requests are made more often, for
example, for a painkiller, the dispenser will be the first person to know about
it, and will let the doctor know that the need for analgesia is increasing. And these are important steps in the
treatment process, let alone in the dispensing. Then, the looking out for keeping controlled drugs in a safe, locked
place; keeping registers of locked drugs. This has all been going on for a long time, in practice
dispensaries. The destruction of drugs,
according to certain Home Office rules. And so, all these things form part of the business of general practice
dispensing. And the ordering of drugs,
so that the stock is not excessive. We
have limited space, clearly, in pharmacies, and we keep the minimum level of
required stock, but we have daily deliveries. And it‘s very important that this should continue. There are, I‘m afraid, certain threats to the
process. And one of them has been
changes in the whole business of the wholesale. The wholesalers seem to be having some kind of a war going on - and, of
course, the people who are going to lose out in this, inevitably, will be the
patients - with supply chains being broken, irregular supplies, and so on. Then there are government changes taking
place, which continually review the pharmaceutical supply of medicines, not
always taking account of rural practice conditions. And I work with the Dispensing Doctors‘ Association
to safeguard dispensing practice, because we feel it‘s a very, very important
thing, which must continue; mustn‘t be allowed to disappear. With regard to diabetes, in particular, one
of the things that we have to keep a close eye on is the strong pressure -
strong government pressure - through PCTs - Primary Care Trusts - to keep down
the costs. And there is a great danger
that keeping down the cost becomes a priority over the effectiveness of
treatment.
|
| | (29) So now, looking back over your whole career
in medicine, what reflections do you have about the treatment of diabetes in
particular?
Well, a big
question! But, I think the first thing
that springs to mind is that, whereas we originally were looking at diabetes as
primarily a metabolic disease - a deficiency in the production of insulin, and
in the metabolism of glucose - now, it‘s increasingly being seen as a disease
of the cardiovascular system. That‘s one
thing. And the other thing is, going
along with that, that one sees this, now, in an increasingly ageing
population. And there does seem to have
been a huge increase in the numbers of diabetics diagnosed. And I think the general view is that it‘s not
just that we are diagnosing them better, but that the incidence is greater,
especially in the older age groups. However, looking at the future, it has been encouraging to hear about
progress in diabetic care, and there are some very exciting things going on in
pancreatic transplants, and the selection of patients for them. If we can muster the resources to do it,
probably the outlook for diabetic patients - especially those who are diagnosed
at an early age - is better than it used to be, when I first started in
medicine. And we hope that with
increasing advances in diabetes research, that there will be more ways of
treating the illness, and its complications, in the next… the following years.
|
|
|
|
|
|