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Mo Linton | | Family memberBorn in Bolton in 1944.
Overview: Mo Linton`s husband, Douglas, was born in 1926 and diagnosed with diabetes aged three. He kept his diabetes secret and became a racing driver, ensuring that his urine tests would pass medicals and keeping his blood sugars high during races. Mo met him in early 1967, when he was 40 and she was 22, but didn`t discover he was diabetic until four years later. They lived together from 1973 and married in 1981. She found secrecy difficult and they both relaxed when everyone learnt he had diabetes after a newspaper reported his opening of a new diabetes centre in 1998. | [View Full Interview] |
| Transcript... |
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| (1) Tell me about your background
| (1) Tell me about your background.
I was brought up
in Farnworth, near
Bolton. My mother was slightly disabled - she had a
clubfoot - and I don‘t think she‘d worked, or at least not very much. She looked after her mother, prior to her
marriage, and she didn‘t get married till she was about thirty six. I was the only child. And my father worked in the cotton mill as an
overlooker. When I was about five, my
mother had breast cancer, and she died just after my sixth birthday. I spent a little time with her mother and
family, then I went to live with my father‘s mother, so that he could carry on
working. He remarried when I was about
eight, a lady I did know who had been a family friend, but unfortunately she
died when I was eleven. So, I‘ve had a
few moves around schools. I didn‘t pass
my Eleven Plus, so I went to secondary school. And when I left there, at first I worked in the blind school, in the
shop there in
Bolton, then I moved to GUS, to
the mail order people. My father
remarried for the third time when I was about twenty one, and he bought a shop,
and we all moved to the shop, which I worked in the shop a while in the
evenings. Then he bought a house, when
he sold the shop, and wanted me to go back... I meant to say, when they sold
the shop, he‘d stayed in an elderly aunt‘s house, because she was in a
home. When he actually bought another
house, he wanted me to go back home, but I didn‘t get on very well with my step
mother. And I had a boyfriend in
London, so I used that as an advantage to get away, and I
got a job in
London
with the civil service, where I stayed till I retired.
What did you do?
Initially, I was
a clerical assistant, and then I just did the general tax. And with promotions, you go on to do more
complicated tax, eventually ending up working in compliance, chasing ghosts and
moonlighters, and doing a bit of enquiry work.
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| | (2) Tell me about meeting your husband, or your husband-to-be.
Well, due to my
mother dying before her mother, her father, in his turn, had left the money to
be divided between the children, so I inherited my mother‘s share when I was
twenty one. And I was mad keen to have a
car. I had learnt to drive, though my
father didn‘t drive; my mother had driven. So, eventually I buy this car, and every time you turn round it had got
a flat battery. The guy I bought it off
had moved to
Bolton, quite recently, with a
firm that he knew who manufactured racing cars, and they were sharing the same
premises. The designer of these racing
cars was so sick, eventually, of seeing my car in, he decided he would fix
it. And through that, and taking my car
back, I met Doug in February ‘67. We
just knew each other; we weren‘t... not involved at all.
What was he
doing?
He was then
working as a musician in the evenings, and he was company secretary and
director of this racing car company. When, as I said, my father bought the house, I moved to
London and joined the
civil service. And not long after that,
he started to come down to see me, either for business or if he was seeing his
family. And it just went on from
then. In December ‘71, I managed to get
a transfer back to
Manchester, and got myself a
bed-sit in
Stretford. Then, in September ‘73, we bought the house
where we live now and moved in together. During the seventies - I can‘t remember the date - Doug had his first
heart attack, and a week later ended up in
Stepping
Hill
Hospital, because the
doctor had told him to double his tablets. But they‘d masked the fact that his diabetes wasn‘t right, and he went
into a coma. I knew about this, and he‘d
told me to give him sugar and water, which I managed to get him to drink, but
he‘d given me the impression that it was instant. So, I rang for advice to ask somebody, but
they sent an ambulance, hence he ended up in hospital overnight.
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| | (3) Had your husband told you that he had
diabetes when you first met him?
No, he never
mentioned it, and nobody else was aware, because, as you‘ll appreciate, he was
racing, and there‘s no way a diabetic would get a racing licence. So, he used to, when he had to do the urine
tests that they did in those days, he used to make sure it was all right
first. It only came out when he had an
operation on his thumb, in the private patients‘ hospital at Manchester
Infirmary. And I was visiting, as were a
couple of his other friends, and the consultant walked in and mentioned
diabetes, and that was the first we three of us ever knew about it.
How long had you
known your husband then?
I should think
about four years, though I had suspected, because sometimes we used to go, say,
to Brands Hatch, to motor racing. And
we‘d be there all day, we‘d be coming back. Suddenly, he‘d pull in at the side of the road, and suddenly eat a whole
bar of chocolate, and not offer me any. I thought "how rude"! But, you know, I just took it for granted; it never… much problem. I‘ve never had a great deal to do with
it. He‘s always maintained it himself. I just watch what he eats.
But how did he
manage to hide diabetes from you for four years, because by the end of those
four years, you were living together?
I don‘t really
know. I suppose, when you came to it,
he‘d just go to toilet and, you know, take his insulin. He didn‘t test himself very much at all, in
those days. So, he just had his insulin
in his pocket, and there were never any... he kept himself quite high, so there
was never any problems.
And you never
spotted a syringe around the house?
I had come
across syringes. While I was still in
London, I‘d stayed with
him at one time, and at first I thought drugs, and then I realised that they
was probably not, but I didn‘t ask.
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| | (4) And then, when he was in hospital, you learnt
that he‘d got diabetes, after knowing him for four years. How did that change things?
It didn‘t really
change things at all. He still didn‘t
talk about it. It was never mentioned when
we were out with people, though, because I was aware of it, I was more
conscious, and tended to watch what, you know, we were doing or eating, and whether
it was going too long. And we‘ve always
tended to avoid going on holiday with people, because of the same problem,
being with them so much. But no real
difference in our relationship at all.
Did his diabetes
continue to be a secret from other people?
Yes, they
did. And if we went to people‘s houses
for meals, it was my job to try and find out what we were having, so he could
guess how much insulin to take before the meal. And that‘s how he‘s always worked his insulin. When we‘ve gone out to restaurants, we
obviously have a good idea what he‘d ordered, and would take the appropriate amount
of insulin.
So, all the time
from when you knew him, he was adjusting his insulin for what he was going to
eat. Do you know how that came
about? Had he been taught to do that?
I don‘t know; he‘d
always done that. He‘d always made it
fit in with what he wanted to do, and - from what he tells me, anyway - and,
you know, it still carries on like that now. He‘ll decide, you know... but now he does regularly test, two or three
times a day, and based on what he sees, how much insulin he takes. In all the years, I think he‘s only been hypo
two or three times, in all those years.
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| | (5) Well, I‘m sorry that I can‘t record your
husband‘s own memories, as he‘s in hospital, but he‘s told you a lot about the history
of his diabetes, so could you tell me?
It started when
he was about three or four, and they think it was caused by shock. He was in bed one night, and there was a very
bad thunderstorm, which his mother didn‘t like, and she woke him up
suddenly. And that‘s the only reason,
because there‘s no record of diabetes in the family at all. Fortunately, he was an only child. And he was taken to see Dr Lawrence, both at
Harley Street and
at King‘s College, and his family were wealthy enough to be able to afford the
foods he needed to eat, and, you know, the services he needed. So, he was controlled quite well. When, in the beginning of the war, Dr Lawrence
arranged for a lot of his young patients to be sent away for the war. Doug went to Brentwood, then, and, in fact,
quite a lot of children from
London
went; many of whom, their parents just disappeared, because they couldn‘t
really afford the food they needed for their children. And he was there until he was sixteen. He hated school, and managed to get his
parents to agree that he left. And he
was given a job, by Dr Lawrence, at King‘s College, working in his path lab. So, he used to do the blood tests, and hours
of doing the... what‘s needed to get the results that‘s now done in seconds. He was going to night school, then, to try
and get more qualifications to carry on in that, but got side-tracked with his
music. And after doing a few odd jobs -
he was a journalist, and one thing and another - he went into the music
business.
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| | (6) When did he get involved with big band music?
Well, he‘d been
having drumming lessons after he‘d left school, and for a drummer, which is
quite unusual, he can actually read music. And so, at the end of the war, he got a job with the big bands in
London. The band he was with, after a while, moved to
Birmingham,
where he was for a year or so. Then they
were coming to
Manchester,
to open at the Ritz. And he didn‘t want
to come, because if
Birmingham was supposed to
be the second city, he certainly didn‘t want to come to
Manchester. However, the band leader did get him to say he would go for two weeks,
which he did, and he‘s been based in Manchester ever since. He loved it when he first came, and lived - though
he has moved away with different bands, in the past - you know, he‘s always
been based here. At some stage, while he
was working in the big bands, he did get married, but I‘m not quite sure what
happened. There were no children, and they‘d
divorced in the early sixties, before we‘d met. Although, he had had a stint, during this period, on the liners sailing
to Australia and back - mainly with the ten pound assisted passages - to make
money.
And how did he
get involved with racing cars?
Well, like a lot
of musicians, they‘ve got a lot of free time during the day, and they get
involved with cars, trading and selling them. And, at some stage, came across Derek Bennett, who was a designer, building
cars, and he got into motor racing. He
actually had a racing licence, and we‘ve got quite a lot of cups that he won. But, of course, being diabetic, he should
never have got a licence, but managed to get through the medicals by making
sure the urine tests were very right. He
did, actually, race once while we were together, in about ‘74, because he -
with the man he worked with - he‘d been and bought a car, which had been
entered in this race. And he insisted
that they carried on with the entry, so, though he hadn‘t driven for ten years,
he actually raced, and came third and got a cup.
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| | (7) Well, you‘ve got pictures of the racing
world, all round the walls in the room that we‘re sitting, conveying kind of
the speed and excitement. But how did he
manage with diabetes during the races?
I think what he
must have done was made sure that he was high, and would remain that high
during the race. They weren‘t long races
he was in: quite often ten, twelve laps, so maybe twenty five, half an hour. So, you know, it worked that way, I think.
So, tell me,
then, about the rest of his career, until he met you.
About the mid
sixties, he‘d stopped working with the big bands, and was doing more clubs in
Manchester; duos and trios. And he‘d got in with, as I say, the racing
people, and one, who was a brilliant engineer, who designed cars. And they‘d started to manufacture these cars,
and they were very successful. And as it
got bigger, the place they had in Salford just wasn‘t big enough, and they moved
to premises in a former cotton mill in
Bolton,
for the manufacturing purposes. And
that‘s the premises where my car was being repaired every time it broke down.
And he was one
of the directors?
And he was one
of the directors there, yes, and the company secretary. So, he did the books, and the other two
directors were… they could do the actual building.
Do you think the
other directors knew that he had diabetes?
No, I don‘t
think so. Virtually nobody knew.
Well, we‘ve talked
about you learning that he had diabetes, after you‘d known him for four years,
and also his heart attack. Can you take
me on from there?
Well, we decided,
in 1980, that we would get married, which we did on 31st of March in ‘81, to
take advantage of the tax reliefs for the whole year, by only being married
five days in the tax year. And we
continued to live where we are here, in Cheadle Hulme, and life just went on. In about May ‘88, he had a second heart
attack, and was in
Stepping
Hill
Hospital. By this time, he was... he was 62, at that
time, and they weren‘t very keen to do bypasses, at that age, with
diabetes. However, as part of one of my
pay deals, we‘d got private insurance for medicine, and he talked the
specialist at Stepping Hill to refer him to a doctor at Wythenshawe, which is
noted for its heart surgery. And he
managed to get them to agree to operate, and in January ‘89 they did five heart
bypasses, which was a great success. And
he had no more problems with his heart, until the last two or three years.
Talk about
living with someone who has diabetes, once you knew. What effects did it have on your life?
Well, apart from
just watching what he ate, and making sure, you know, that things weren‘t too
rich or too much carbohydrate, it didn‘t really make much difference. We travelled. We would drive to the south of
France
; we went there about six
years running. We‘ve been to
Turkey
, we‘ve been to
Canada
,
and travelled across
Canada
. And we‘ve just got on with life, and gone
where we‘ve wanted to go.
What about the secrecy
- how did that affect you?
Well, generally,
it was a tension thing, myself, because I always felt I had to watch to make
sure that he wasn‘t, you know, getting too low and losing consciousness, or,
you know, starting to talk rubbish. That
was a bit of a stress, if we were with people. So, more often than not, we‘ve tended to be on our own when we were away
on holiday.
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| | (8) By this time, he‘d started, actually, to go
to a diabetic clinic, regularly, at
Wythenshawe
Hospital. And they had managed to get funding to
convert one of the old doctors‘ homes into a walk-in diabetic clinic. And they realised that Doug was at least the
oldest surviving diabetic in
South Manchester,
so asked him if he would open the diabetic clinic with Paul Goggins, the MP for
the area. This, of course, got covered
in the press, and everybody suddenly discovered that he was diabetic. And he didn‘t get a lot of rib... he did get
a lot of ribbing from people for keeping it quiet, all those years.
How did he feel
about it being known?
I think he felt,
in the end, relaxed, because really, he was no longer racing, so it didn‘t affect
anything in any way, it didn‘t alter our lives in any way. And it‘s helped to explain things now, when
his health has deteriorated in later time.
You said he‘d
started going to a clinic. How much had
he been to clinics, in the past?
He virtually
never went to a clinic in twenty years, or more, I wouldn‘t have thought, especially
when he was in the big bands. It was
only in the seventies, early eighties that he started to take a bit more care,
and he‘d moved onto blood testing from urine testing. And he‘d also had, with the U100 coming in,
he had a bit of problems sorting himself out. He liked the pork insulin, and there was quite a few experiments trying
to get him stable.
Did he move onto
a different insulin?
Yes, he did, and
since then he‘s moved on again. I can‘t think
what they‘re called now.
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| | (9) So, from 1998, nine years ago, everyone has
known about his diabetes. Tell me what‘s
happened since then.
Well, generally,
for quite a long time, not a lot happened. He‘s got older, obviously, and he started having problems walking. Eventually he had a knee replacement, in
November ‘03, and after being discharged, he had breathing problems. And they took him back into hospital,
thinking he‘d got an embolism, but in actual fact it was fluid on the
lung. But while he was there, he
acquired a blister on his heel. And the district
nurses came.
How did he get
the blister?
I think he must
have... the bedspread must have been a honeycomb, or something, and he must
have been moving his heel up and down, and a blister had just appeared on his
heel. The district nurses were coming in
to dress it, because he was diabetic. And
we‘d started to put moisturiser on his legs, to - since he‘d had his knee
replacement - to encourage it, or the skin, and we were using an E45. One of the district nurse sisters had an
emulsifier, which she thought was probably better, and used it on his legs, but
unfortunately it started the skin weeping. And nothing we tried could stop it, and, of course, he developed lots of
ulcers. And it just went on and on, till
the following… in 2004, in the September, they took him into hospital, and made
him have bed rest with his legs up. Because
the weeping is partly vascular, he was only comfortable to sleep with his legs
hanging over the bed, which is the worst thing can happen for the ulcers. So, they had him in hospital with bed rest,
and his legs did dry up, and they were starting to heal quite well. Eventually, by the summer of ‘05, they‘d
virtually healed, and he just had two tiny ulcers on the ends of his toes,
though he had lost a couple of toes. We
went to
Jersey, that year, on holiday, which
was the first holiday we‘d had away for quite… for three or four years. But he was eighty that year - sorry, seventy
nine, he was - but he was healing nicely. Then, following his eightieth birthday, we were invited to a party. And he had a little too much to drink, and
when he got out of the car and walked round the front to come in the house, he
staggered and fell and broke his hip, and ended up back in hospital again. And within thirty six hours, had ulcers on
both heels. And we‘ve struggled, now,
for the last ten, eleven months trying to get those healed. And then, in July this year, he fell over again,
and broke his collar bone. And that‘s why
he‘s still in hospital at this time.
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| | (10) How good would you say his treatment has been,
in recent years?
Well, generally
very good. When he went into Wythenshawe
for bed rest in ‘05, the diabetic people didn‘t have any beds, and because the
vascular specialist was on holiday, they managed to get one of his beds. And when he came back, he‘d seen Doug, and he
was star... two or three of his toes were dying. And the specialist wanted to take his leg
off, which would have had to have been above the knee, because of the knee
replacement. However, a very good
podiatrist, Simon Goodwin, said that he thought he could save his leg, and as
he wasn‘t keen to lose his leg, he decided to go with him. And he has been absolutely wonderful, and
that‘s why his toes had healed up, just before he fell over in 19… sorry,
2006. Also, the specialist at Wythenshawe,
Dr Younis, has also been great, and very helpful. All this time, from the December of ‘03,
we‘ve been having district nurses - sometimes daily, sometimes three times a
week - and they‘ve been absolutely wonderful. I mean, the fact that when she gave them lubrication that set his legs
off, she wasn‘t to know that he was allergic, just as he can‘t take cotton wool
against his legs, now, and some dressings. But, we‘ve been really well looked after,
under the National Health, these last few years.
Would you say
that, since you‘ve known he had diabetes, it‘s been a big thing in your lives?
No, I don‘t
really think so. It‘s always been there,
in the background. But we‘ve just tried,
you know, to do what we‘ve wanted to do, and make it fit in around our plans.
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| | (11) Has it had a big effect on his life?
Over the years,
I‘m sure it must have done, especially in the early years, when things were
much more restricted of what you could do, and what you could eat and not eat,
and the way people viewed it, in those days. In those days, they seemed to think it was a disability, and even some
people thought it could be caught. So, I
think he was restricted in some of the activities he could do, as a youngster,
that they go ahead and do now. But, as
he became a racing driver, and was quite successful, it shows you can get
around it, even though I‘m sure today, you still wouldn‘t get a racing licence.
What equipment
does he use for his diabetes now?
Well, he still
uses the disposable syringe; he‘s never used a pen or the ones that can help…
are putting it in all the time. And he
has blood testing meters, which are provided by the manufacturer, so that, I
suppose, they‘re getting his doctor to buy the strips for him.
And what about
his attitude to diet - is that very strict?
Not really, no;
it‘s a case of what he fancies. He‘s
always said that he bases his life, as a diabetic, on Dr Lawrence.
In what ways?
Well, I think Dr
Lawrence, from what he tells me, was more as "do as I say, not do as I
do". He says about him going to
dinners, and Dr Lawrence would just go into the gents and inject himself
straight through his trousers. And he
drank, and did everything that you were not supposed to.
And is that the
model that you husband has followed?
And it‘s
certainly the model my husband has followed. He has always drunk quite... until the last few years, he‘s always been
quite a large drinker.
Have you ever
had any involvement in his injections or blood tests?
No, I‘ve never
needed to. He‘s always managed them
himself, and even now, he‘s over eighty, he still does all his own blood tests
and his insulin injections. He‘d been
managing for years, before he even met me, that it‘s just a way of life for him
now.
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