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Simon Lawson | | Person with diabetesBorn in London in 1945. Diagnosed Type 1 in Somerset in 1950
Overview: Simon Lawson`s father was 65 when he was born and his mother 44, and both died while he was in his teens. His unhappiness affected his public school education and he failed to get a place at Cambridge. Instead he worked at Sotheby`s in London and it was only after he married in 1971 that he obtained a degree and a doctorate – leading to his present work as an Oxford University librarian. He has warm memories of being treated by two eminent consultants – RD Lawrence and John Nabarro – and has always enjoyed knowing as much as possible about diabetes. | [View Full Interview] |
| Transcript... |
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| (1) Tell me about your background
| (1) Tell
me about your background.
Well, I was born in 1945, and
my father was sixty-five, then, and my mother was forty-four, so perhaps I
need to explain, perhaps, why they were so old, you know. My father was born
in 1880, and he was married about - I don‘t know exactly when - but at the
end of the nineteenth century he was married, and he had three children before
the First World War. And then he went off to fight in the war, in the trenches,
with his brother, and his brother was killed but he wasn‘t. And when he came
back, he found that his wife had gone off with someone else. I mean, the
actual history behind it, I don‘t know very well, but anyway, he was without
a wife! And there was a tremendous hoo-ha about that and a divorce proceedings,
which was very unusual in those days, because no one ever did this sort of
thing. And then he married again, and he really loved his second wife. And
they had two boys, and of these two boys, one of them was killed in the Second
World War. And he was a Fleet Air Arm pilot, and he was killed landing on
an aircraft carrier in the Pacific, and that really upset my father. But
the second wife died. And in, I should think, at the end of the ‘20s or the
beginning of the ‘30s - something like that - my father was a soldier and
he was in Gibraltar, for some reason. And my mother
was with her brother, who was also a soldier in Gibraltar,
and they met. And I suppose they fell in love quite quickly - I don‘t know
how quickly - but they were married. And, as I‘ve pointed out, there was
quite a big difference in age. But, they didn‘t have any children for a very
long time. I mean, just say they were married in the early ‘30s - something
like that - and I wasn‘t born till ‘45, so there were no children. Perhaps
they felt that there were enough children already in the family, which indeed
there were, and... But, anyway, I was born in 1945, after the end of the
war. And my father had had various jobs. I mean, he was a soldier in the
First World War, and between the wars he was in the British Army of the Rhine,
so he was in Germany.
And really the wars took up a lot of his life, and being a soldier. And then,
when he finally ceased to be a soldier before the war, he worked as a
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house agent in London. And he... at that stage, they lived in
a flat in London. And I suppose
he saw lots of houses, and they bought this house in Somerset.
And the reason why they did that was to be really close to his daughter.
There was only one daughter - the girl from the first marriage - and she was
married to a man in Somerset, and I think he wanted to
be close to her, so they bought this house in Somerset. And during the war, when he had to be in London - the Second
World War - he had to be in London, because he was an Air Raid Warden - and
during that time, he used to go up to London to do what he was doing; it was
his job, you know, in the war. And I think my mother was mostly in this house,
which they hadn‘t had very long, in Somerset. And so, at the end of the war, I was born in 1945. And
my early memories of being a little child in this house was that they had
masses and masses of animals of various kinds, masses of hens. And I think...
I know they got the hens to have eggs to take up to the flat in London. And the flat disappeared very soon after I was born, I think.
But, I remember things... and later on, they actually had a farm with Jersey
cows, which my mother was very fond of.
Were you well off as a family?
Well, I suppose people would
say we were well off, but I think it was a struggle to live in the way that
my father wanted to live. I mean, my father‘s father had done extremely well.
He died before the First World War, but in his time he certainly was well
off, and he lived in a big house. My father always used to say it had fifty
bedrooms, but when my wife and I went to look at it, we couldn‘t quite see
that there were fifty bedrooms, but it was a big house, which funnily enough
he never owned. He rented this house, he rented his flat in London,
and he went up from Yorkshire to London
for various reasons; but that was my grandfather. But no, my father had to
work, and his method of working, once the war was over, was that he joined
the family firm, which made textile machinery. And he used to go up from
Somerset to Yorkshire every week
and work, and then come back for the weekend. As I‘ll say later on, I did
go to private school, and I remember exactly what it cost. And this rather
presumes the fact that I must have heard them talking about the cost, which
may suggest that it was a problem. There was about a hundred boys in this
school, and the cost was ninety six pounds a term, which, of course, then,
was a lot of money, but they managed to pay it somehow. So, yes, people would
think we were well off, but we weren‘t hugely rich. I think they managed,
somehow.
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And when were you diagnosed with diabetes?
Well, 1950 was the time when
I got it. I... of course, you have... as you understand, it‘s a very long
time ago, so my memory‘s slightly blurred, but certain details are very, very
clear. I remember the GP - Dr Everett - who came to see me about this - see
us about this - and I remember him saying that he thought I had diabetes.
In fact, I don‘t think he thought; he knew it, that I did have diabetes.
And I should say that during all this period, both before and after, I was
always in bed with something: usually colds, coughs, and, you know, the usual
tonsils, adenoids; everything. And so, seeing Dr Everett was quite part of
my normal life! But, before I was... before it was diagnosed, it was a question
of feeling... just feeling ill, having very bad nights, you know, with dreadful
dreams - frightening dreams - and, of course, the usual thing of always going
to the loo and feeling very thirsty, and looking very pale and thin. And
my mother and father must have kn… you know, it was quite obvious I was ill,
and the doctor had no problem in telling that that had to be it. I mean,
there were no blood tests then, you see, so the doctor looked at me and asked
about me, and he knew that I had diabetes. And, of course, I was only five,
so I don‘t know what sort of conversation went on behind closed doors. But
I expect my father and mother must have asked where on earth they should take
me, and the result of this was that I went up to see Dr Lawrence. And I went
to see him - the first of many visits in the London clinic
- but I actually went to King‘s College Hospital; my only visit there. But
I remember it quite clearly, because it wasn‘t just a question of getting
me stabilised, there was also a question that I got quite ill with constipation
while I was there, so I had really two problems. And anyway, they got over
both these problems, and I started on my insulin. And, as you‘d expect with
this medicine, once it began to work, I began to be a normal naughty little
boy again. And I remember rushing about and attaching all the trolleys together.
They had these high trolleys, which were really used like
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bed tables which went over the bed, and these could be attached with, I suppose,
pieces of string or something, and pulled along, which made a lot of noise.
And I‘m sure I wasn‘t allowed to do it more than once. But, you know, once
I got over this rather traumatic thing - the constipation was definitely the
worse of the two, and I don‘t know why it happened - I began to get well quite
quickly.
How long were you in hospital?
I don‘t remember exactly, but
it seemed an age, and I suspect it was more than a week; probably about two
weeks. And, as you know very well, Dr Lawrence had a particular diet, which
my mother had to learn, really. And for a long period in my earlier life
- and, in fact, I should say, almost all my life - I‘ve been in the habit
of measuring and weighing. I don‘t do it now, but for part of my life I did
that, and in the early days, yes, everything had to be weighed. Two thirds
of an ounce of bread is ten grams of carbohydrates is one portion. Seven
ounces of milk is ten grams, equals one portion, you know. And it all had
to be divided into portions. And the injection - one injection a day - was
an injection, which at that stage of my life lasted, you know, the whole twenty
four hours, so it was a mixture of quick acting - which, of course, was not
quick acting, as you know - neither of them were - and the slow acting, which
was protamine zinc. I forget what the quick acting was called. But really,
the nightmare for me, and probably worse for my mother, was that I hated the
injections. I cannot tell you. If there was anyone who should not have been
a diabetic, it was me, because I‘ve always had a great fear of pain. And,
of course, I was very good in the hospital - I did what I was told, and I…
you know, they just did the injections. But when I got back home, then, I‘m
afraid, I began to fight. And my mother and I had these struggles, sometimes
lasting a long time, during which I would resist this thing, which I knew
I had to have. And this actually went on, not just with my mother and myself,
but most of all with me. I had to find a way of getting over this. And actually,
I didn‘t get over it until I was at my public school, when I was, say, thirteen
or fourteen, when there was a wonderful nurse in the San who discovered a
thing called a Palmer injector, which was a thing which looked a bit like
a pistol.
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And you put the syringe into these clips, and you pulled a, you know, a trigger,
and that put it in. And that was the answer to my problems, although, even
then, I used to sit around thinking about it, for a long time. You couldn‘t
believe, you know, what I was like. But that was my problem and that was
how it was.
Going back to the time in hospital.
You‘ve talked about injections and diet - what about testing for sugar levels?
Yes, well, that was the other
thing which I remember very clearly, and, in fact, I even remember the name:
Benedict‘s solution. And, as you will know, probably, it was quite a hassle
this, and the other thing about it was that it was very slow. It told you...
it didn‘t tell you how you were at that moment; it told you how you were perhaps
three hours or two hours before. But I can remember the - I call it a Bunsen
burner, but, of course, it wasn‘t really, it was a spirit burner - and the
long test-tube, into which you put a mixture of urine and Benedict‘s solution,
and you had to heat it, you know, on this flame, and the colour showed you
more or less how you were. I can‘t tell you how wonderful it is to do blood
tests, because you know exactly what you are at that moment. And the difference
between then, in those early days, when you didn‘t feel well but you didn‘t
know why - of course, if you were very sugary you‘d be thirsty and if you
were the opposite you‘d be feeling faint, that‘s clear, but in the middle
- all that big thing in the middle - it was impossible to tell without doing
a proper test, which we couldn‘t do. And I can remember every stage as things
got better. In fact, there were only three stages: one was Benedict‘s solution,
and the next was Clinitest tablets, and then last and best was the blood test.
But the Clinitest tablets were a huge advance, in the fact they were so easy
and so quick, and I was a great tester with the Clinitest tablets. But, of
course, when I started using them, I wasn‘t in charge of my life, and so it
wasn‘t... in the beginning it wasn‘t me who did it. But for most of my life,
I certainly did do it a lot and I relied on it tremendously.
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And what memories do you have of Dr Lawrence?
My memories of Dr Lawrence are
first of all the London clinic, and
many, many visits there. And going there by taxi, and going into this courtyard
and then going in, and going up this lift and coming out of the lift, and
going into his... he had a small - perhaps only two rooms - a suite of rooms
in the London clinic. And the first room was inhabited by Miss Pearce, whose
name was quite a good name for Miss Pearce. And it was Miss Pearce who was
his assistant, and did a tremendous amount of his work, and was rumoured to
be the person who has actually written the famous diabetic ABC. And then
beyond Miss Pearce‘s room was Dr Lawrence, and he was such a kind man. I
remember him... I don‘t know whether this is accurate, but, of course, I was
tiny, so he seemed quite a big man. I always remember his bow-tie. I can
remember him wearing rather dark suits. And at some stage, quite early on,
I was told - or I realised - that he also was a diabetic. I‘m sure that was
because he talked about it. His whole life was dealing with diabetes from
himself, and then, because he was so good at it, teaching others to do the
same thing. But the worst thing of all about the visits was the blood test,
which had to be done perhaps once or twice a year, which involved sitting
close to Miss Pearce, and she would make a nick in your earlobe. And she
would then get this long pipette - about that long, about nine inches long,
I would say - and she would quite roughly put this pipette against the blood
in the ear, she would squeeze the ear and somehow get the blood into the pipette.
I think she may have sucked it in; I‘m not sure. But anyway, she ended up
with this very thin, long pipette full of my blood, and it was very painful.
And that was definitely the worst - nothing else was as bad as that, and it
was because of that that I used to dread going there. But I didn‘t dread
seeing Dr Lawrence at all - he was very, very nice. And he would ask the
usual questions: how we were doing, how we were managing, you know, the blood
tests and everything - not the blood test, the, you know, the urine test -
but then later on, when they‘d got the blood test, he would write to my parents,
I presume. And he would talk about the, you know, how much insulin I needed,
and, of course, at that stage we would try to tell him how we were. I say
we - I would say and my mother would say. And, of course, every diabetic‘s
life involves times when you need sugar, you know, when you‘re... I used to
call it blue for most of my life, and, in fact, I still call it blue, because
blue is the colour on the Clinitest, and when I feel blue is when I need sugar.
But, in the early days, I didn‘t really do that. We had barley sweets, and
I remember having a little pony, and I used to go out on this pony with members
of my family for quite long rides on the pony. The pony was as safe as a
house, you know - literally, you would never fall off that pony. But in my
pockets were all the barley sweets, which I would suck if and when I felt
blue. And so, that‘s more or less what we talked about, I expect, when we
went to see Dr Lawrence.
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And how did your mother cope with your diabetes?
Well, I think she must have been
quite… very worried about it, really. I think it must... I mean, I think
they must have, for some time, realised I was ill - it was quite obvious I
was ill - and I think they must have been very relieved to find out that I‘d
got something which was treatable. And, you know, going to the London
clinic and all that, and getting me onto the diet and the insulin and everything,
meant that I was being treated, and I did get better quite quickly. But,
I mean, I remember the doctors asking them the usual question: is there any
diabetes in the family? And my father, having been born in 1880, you know,
he must have remembered relations who were born at the beginning of the nineteenth
century, and when people didn‘t really make records. Although, as we know,
diabetes has been known since the time of the Egyptians, and has had a name
all through history. I don‘t suppose that people would remember that immediately.
But, I think the difficult thing for my mother was... I mean, I think dealing
with the diet was not difficult - you know, we measured things. We really
ate the same food that we‘d always eaten, but mine was measured, and you have
to remember that in those days, life was... food was fairly simple. People
really did eat meat and two veg, and it‘s true that everyone had puddings,
but I just had less pudding than everyone else. So, food wasn‘t the sort
of complicated foreign mixture that it is now; it was fairly simple. So,
that part of it was easy, I think. The difficult part was - undoubtedly for
all of us - was the injection. My father never did it, but my mother had
to do it. And it wasn‘t a question of just sticking it in, I‘m afraid. It
was a question of a traumatic battle with me, when I would really fight to
stop it. And so, what happened next was, I feel, really almost certainly
because of that. I went on having my usual colds, and I remember always being
in bed with colds and flus and that sort of thing, and I remember, of course,
going - like so many children then - going to hospital and having my tonsils
out. But our house looked east towards London across the
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Blackmore Vale, and about twenty miles away there are the hills where Shaftesbury
is. And I remember this vividly, because twenty miles away in that direction
was this prep school, which they found to send me to when I was only seven,
in 1953; the year the Queen was crowned. And the... what I heard was that
it was higher up, which indeed it was high up, and being higher up would be
good for me for my colds and all that, and would get rid of that constant
cold problem. But this prep school had a full-time nurse, who became very
much part of my life. And I can‘t help feeling that that was part of it -
that my poor mother must have been exhausted by these daily battles over the
injection, and for me to be looked after by a full-time nurse, who could deal
with everything and would have no trouble injecting me, must have been part
of the deal, and I suspect that was it. And I hated going to school, absolutely
loathed it, because I loved home, absolutely loved being at home and loved
my parents, hated going away. And, of course, I was an only child, so, you
know, for me it was really traumatic. But once I‘d got over the first day
or so, I was very happy there. And it was the most beautiful house, and it
had belonged to General Pitt Rivers, who was a great nineteenth century archaeologist.
And there were masses of digs - remains where he‘d dug - and, you know, Roman
camps and things like that, and we used to play games in these things. And
it was the most beautiful place in the world, and I loved it. But the main
thing for my parents, I should think, was the diabetes was looked after by
this nurse, and that was marvellous.
Were there any other diabetics
in the school?
No, there weren‘t. I was the
only diabetic in the school then, and, in fact, when I went to my next school,
I was the only one there too. And my next school was much more difficult.
In fact, I would say it was very, very difficult, because a prep school is
a place which is enclosed; it‘s a bit like a big family, and it‘s got a nurse
to look after you. A public school is totally different. When you‘re thirteen,
you‘re supposed to be able to look after yourself, and there is a tremendous
rush. There isn‘t time
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sit around; you‘re always being active. And I was in this... to call it a
nineteenth century building would be really much too kind; it was more eighteenth
century, and there was no heating. And I had to get up and do my injection,
and I hadn‘t learnt to do it. For about four or five years, I used to sit
- you wouldn‘t believe this, would you? But it‘s true - I used to sit pushing
the needle in slowly, because I didn‘t have the courage to stick it in quickly.
And just to tell you quickly what happened: I was in this environment when
I went there - my father had already died, my mother was still alive - and
I was going to Sherborne, which is seven miles away, and I was a boarder there.
And I just couldn‘t cope with it, and I quickly had a very bad coma, and Sherborne
wrote to my mother and said that I couldn‘t be a boarder. I was the only
boarder in the... I was the only diabetic in the whole school, and they couldn‘t
cope with it. I expect you know that… I mean, they don‘t have nurses in the
houses. They‘ve got one full-time nurse in the sanatorium, who deals with
seven hundred boys, but only when they‘re ill. And I had diabetes, and I
wasn‘t supposed to be ill. So, I ceased to be a boarder. I lived with my
mother at home, and there was a lady, who she knew, who used to go from where
we were, seven miles into Sherborne, and used to take me there every morning.
And before she arrived, we had the battle. Even then, when I was thirteen,
battling still - saying no. And this woman was a nurse - she worked in the
hospital - and she used to help my mother sometimes. You wouldn‘t believe
it, but it‘s true. Anyway, there we are. So, what happened next was that
my mother died. And I went, in the holidays, to live with my uncle and aunt,
and in the term, Sherborne found me a very nice master and his wife for me
to live with. This master was a music teacher at the school, and he had a
son about five years younger than me, and I became part of their family in
the term. And this house was next to the sanatorium, and I went into the
sanatorium - about a two minute or three minute walk in the morning - to see
this nurse. And she looked at me, and I don‘t know what she thought, but
I don‘t suppose she‘d met anyone in her life who‘d had diabetes from five
to thirteen, and still had this problem.
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But she said "well, I know how to deal with this", she said "there‘s
a thing called a Palmer injector", and she got one for me. I can see
its black box, and you open the box, and inside, wrapped in tissue paper,
is this metal thing, which was the shape of a pistol, but it was just made
of a thin metal strip and it had a spring. And you put the syringe into these
clips, you pulled the trigger, and it just pushed the needle into the skin,
and you then pushed the plunger. And that was really the beginning of my
free life. I then could deal with the problem. I don‘t say it was easy;
it was still... I mean, I would spend five minutes, sometimes, thinking about
it, but it was easier. And also, actually, it made it easier to do it in
other places. I could lie on my tummy and put it into my bottom, which meant
I had more places to deal with. So, it wasn‘t just the fear - it was also
the… you know, moving about the body‘s easier, so that was really the answer.
And my life, then, was a strange life, which rather meant that I couldn‘t
really say that I was a boarder. When I look back on Sherborne, I look back
on it as a time… partly a time of misery, because my mother had died and my
father died before, but also the fact that I wasn‘t really part of the set-up.
I wasn‘t a boarder, and I was the only one who wasn‘t a boarder, and I lived
with this sweet family who looked after me. But I, you know, I went on with
my studies and everything. And at that time - I can‘t remember exactly when
I ceased to go to Dr Lawrence, and the reason for that may have been due to
his old age - but I do remember very clearly that when I was at Sherborne,
I was looked after by the GP there. And I went through that period under
his control, and it was only when I went to London, which was in the early
‘60s - well, ‘63, ‘64, something like that - that I went to the Middlesex
Hospital of my own accord, although probably with the help of the GP in London.
And it was there that I began to be looked after by Dr Nabarro.
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I‘d like to just backtrack and ask two things. First of all, you said that
your father had memories of the family right back into the nineteenth century.
Was there any diabetes in your family?
No; as far as I know, absolutely
not. And I can remember searching questions about that, and the answer was
absolutely negative. I remember this especially, because, of course, when
my son got diabetes, also when he was five, the same questions were asked
of us. And we were able to say positive questions on both sides to that,
but my parents, no, absolutely nothing to do with diabetes. Nowadays, we
know that when women have babies quite late in their life, they might have
illnesses, and maybe that was the reason for the diabetes, but then, they
didn‘t know that, and they had no idea why I was diabetic.
And then the other backtrack
is to when you started using the Palmer injector, because you say your independent
life started then.
Well, I suppose I must have been
about sixteen. It was, you know, after my mother had died and when I went
to live with this master and his wife in Sherborne, and this nurse at the
sanatorium found this Palmer injector for me. And that was... it had to be
then, when I was about sixteen, yes.
And before we go onto your leaving
school, can you talk about how pupils and teachers reacted to your diabetes?
I have to say that that is a
difficult one, really. I can answer it best, perhaps, by saying that long,
long afterwards, I met a man who‘d been a master at my prep school, who had
apparently got into trouble for something, and I can‘t really remember what
it was… But what I‘m trying to say to you was that I knew I had diabetes,
and, of course, they knew very well, but I can‘t really remember any particular
problems about that, and I can‘t really remember that it had any particular
effect on the way I got on with masters. I can very well remember how it
got on with what I did - I mean, for instance, the fact that I absolutely
hated games; hated them. When I was at prep school I had to do them, because
everybody did. Sherborne, when I got there - or at least after I got there,
after their bad experience of me having comas - I think they more or less
gave up. And they made me play rugger a little bit, and then I stopped playing
rugger. They felt that I must do exercise, so I had to go on runs. But I
was a sort of semi-member of the school, if you see what I mean, you know.
And so, I definitely wasn‘t doing everything that everybody else did and that‘s,
I suppose... Have I answered the question? Yes, I hope so.
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What did other pupils think of your diabetes?
Well, I‘m not so sure that it
was totally because of my diabetes, although I suppose they knew that, but
I think the main thing was that I was a weedy little person who didn‘t like
games, and didn‘t particularly like... want to be part of a sort of group
or team, and I remember being bullied. In fact, I remember before I went
to my prep school, when I used to go to a day school. And there was one red
haired boy who decided to bully me, and my father told me that I jolly well
had to stand up to him, and, in fact, I did and he ran away. So, I mean,
I must have learnt to deal with this problem quite early on. But, I don‘t
really know whether it was particularly because of the diabetes. I think
it was just because I was smaller than the others, you know. And I can‘t
say that I had any great miseries because of this. I think most schools -
even going back a long time - are aware of bullying and do their best to stop
it, so I don‘t really remember being bullied. I do remember when I was able
to join in. For instance, at my prep school, we had these wonderful forests,
really, and we used to make little houses in the forests. And that was one
of our things that we did perhaps once or twice a week, and that I loved doing,
and that was, you know, a way of joining in with my peer group, which, in
many ways, I did. So, I think bullying wasn‘t so very bad, really, looking
back on it.
What did you do when you left
Sherborne?
Well, it took me quite a long
time to get into gear, really. What I should say, really, was that later
on I got a very good degree and I got a doctorate. But the main problem with
Sherborne, really, I think, was not so much the diabetes, as the fact that
I‘d been knocked sideways by losing my parents. My uncle and aunt were very
kind to me and I was very happy with them, and, in fact, maybe it was a good
thing to be with them, but I wasn‘t able to do very well at my A Levels.
You know, I got fairly good things, but I couldn‘t get into Cambridge,
which is what I wanted to do. I wasn‘t up to standard for that. So, I had
a bit of time sort of not doing... well, doing a lot, but not getting anywhere.
I mean, I was in London, staying in an old lady‘s flat, and I went to a crammer
to get the two A Levels that I needed for Cambridge, and having got them,
I didn‘t get into Cambridge,
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So, I then spent six months in France, which was lovely, but not terribly
successful, in that, although I love France, I‘m not good at languages, and
I don‘t think I learnt very much French, but it was quite fun. And then it
was a question of "what on earth should I do?", and I‘m afraid it
was a question of... a choice. I didn‘t know what I wanted to do, but I had
friends who could help me to get jobs, and one was in publishing and another
one was in Sotheby‘s, the auction house. And I almost chose it with a penny,
I think, really - you know, flicking a coin - and the result was that I went
up for an interview at Sotheby‘s, and this was in 1965. And I joined Sotheby‘s
as a learner-porter, which meant that I was a porter: that I was doing jobs,
having to get there early - well, it seemed early - half past eight isn‘t
really early, is it? - but it was earlier than everyone else - and getting
the rooms ready for the sales that day, and moving stuff about and doing various
odd jobs. And the idea was that you‘d have two years as a learner-porter,
and during those two years you would probably get into a department. And
I did, very quickly, get into a department, which was antiquities, which was
dealing with ancient things from all the various civilisations. And that
was wonderful for me; I absolutely loved it, and I loved Sotheby‘s. There
was a lot of young people and I got on with them very well. I should say
that the diabetes was always in the background, because it was still... I
mean, the era of blood tests was light years ahead, and we were still very
much with Clinitest. And, as you know, big changes and working long hours
and doing new things really affects your diabetes, so I did have quite bad
times when I was blue and needed sugar. But I was very lucky - I‘ve often
been lucky in life - and there was a very nice young man my age, who‘d been
at Sherborne with me and knew I was a diabetic, and when he saw me sitting
in a corner looking pale, he would tell me to eat sugar, which I did. And
so, you know, I got through that. But anyway, it was at that period of time
that I went... that I began, probably with the help of the GP, to go to the
Middlesex and to be looked after by Dr Nabarro, who was such a wonderful man.
I mean, he was a sort
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of fatherly man, and he would sometimes... I mean, his job, really, was to
look after my illness, but he would sometimes say things which were like a
fatherly thing, you know. I mean, I, for ages and ages I was doing research,
and I was doing my... well, I mean, when I was married in ‘71, I then went
back to university and got my good degree that I wanted, because I was stable
and healthy and well, and I then did a doctorate. And Dr Nabarro said "well,
you have to think about your pension, you know. Diabetics need to have a
stable life, you know". So, he would give me that sort of advice, which
was lovely, so he was much more than a doctor. But also he was the most wonderful
doctor who looked after me, because I had various adventures, as you‘d expect,
and one of them was that when I was cataloguing for Sotheby‘s, I catalogued
Egyptian things, which I absolutely loved; it was heaven. There was so much
Egyptian stuff around from private collections and things like that, and I
used to catalogue it. And I went to Egypt twice. And when I went to Egypt, I was actually just getting Addison‘s Disease
then, and this was in about ‘68 - ‘67 or ‘68 - and heat is the worst thing
for that, and I wasn‘t being treated. So, I went to Egypt and I began to be weak and ill, and I had
no idea what the matter was. And I ended up in this strange... well, it was
a wonderful hospital, run by French nuns, in Luxor.
And they treated me in... I mean, I don‘t know that they knew what was the
matter was - nobody did, actually. They didn‘t know what to do with me, but
they tried to treat me, and they were then sent me to a wonderful big hospital
in Cairo. And from then - that - I struggled back,
feeling so ill. I can‘t tell you how ill I felt; struggled back home. And
I lived in a flat on the top floor, but I couldn‘t really walk up the stairs,
I was that ill. And I went to the Middlesex then, and Dr Nabarro tested me
in every way. And I think... I mean, the problem with it was that the diabetes
was masking the other problem and it was difficult to tell, but he discovered
I‘d got Addison‘s Disease and started to give me cortisone. And, as with
the insulin long before - but more dramatic, in a way, because, of course,
I can remember it much more clearly - you get better at once, you know. I
mean, I had a month off work or something, but I remember getting better very,
very quickly,
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and learning to deal with this new thing. It‘s a much easier thing to deal
with, because, you know, there aren‘t any injections and there‘s no diet.
And the only problem is when you‘re ill - when you double or treble the dose
of cortisone - and that mixes up or distorts the balance of the insulin, and
you have to get everything back to balance. And in those days, it wasn‘t
so easy, because we didn‘t have blood tests. But anyway, that was perhaps
the main thing that Nabarro did for me, which was... maybe any doctor would
have done that, but he was such a kind man, you know. I remember, of course,
lying in bed feeling ill, and Dr Nabarro would come round with his - he was
a great man, you see - and he had all is acolytes and nurses round him, and
they would discuss my situation, and… But he was kind and sweet, as well
as being marvellous, so he was a great man to look after... you know, man
to look after me. And, trying to remember all the... I mean, the thing about
travelling, which is what I did… I mean, later on, when I was doing my thesis,
we went to India. And I was married then, and I went with
my wife and my mother-in-law and my little boy, who was two. And we had the
most wonderful time, and masses of inject... masses of - I say masses of injections,
that‘s a mistake - yes, we did have masses of injections, but masses of fun.
But even then, people didn‘t know about things. I mean, people know now that
if you go to a hot country, you need to have more fludrocortisone, and if
you don‘t, your blood pressure‘s going to go wrong. Nabarro didn‘t know that,
and nobody knew that. And I went to India in a time when it wasn‘t very hot, you know,
in the winter. At the end, when I was tired with all the research I‘d been
doing, and it began to get very hot, I began to get ill. And I had nothing
to deal with the illness, except the... nothing really at all to deal with
it, except that in my luggage I had the fludro - the fludrocortisone - which
now I know would have made me better, but I didn‘t know that then. But anyway,
I was tired, and I got back, and, of course, the minute you do get back, you
get back to an equitable climate and away from the heat, you know, as somebody
with Addison‘s and diabetes, you begin to get better
very quickly. Yes, it was in about 1977 that I went for this four months
or so to India, and I went with my normal medicine plus antibiotics, just
in case I needed it, and indeed I was ill once or twice, but on the whole
I was pretty well. But that was just about then, you know, exactly then.
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What did you do when you left Sotheby‘s?
Well, I actually left Sotheby‘s
in stages, in that, when I got married in ‘71, I very quickly decided that
now I was able to do the degree that I wanted to do. And the background to
it really was that I worked in this department at Sotheby‘s which dealt with
masses and masses of different cultures, and one of the cultures was Tibet,
and I was cataloguing Tibetan things. And I wasn‘t allowed to do the Indian
things, because my boss enjoyed doing that! - you know, there weren‘t very
many of us. And so, what I wanted to do was to go to the School
of Oriental and African Studies and to do a degree
in Indian history, because the Tibetan culture… most of Tibetan culture comes
from India,
and certainly the Buddhism there comes from India. And so, about that time - say ‘72 or so
- I started to do my four years at the School
of Oriental and African Studies, which included a
year learning Sanskrit and three years learning history. And at that time,
I was working as a sort of consultant. I‘d go into Sotheby‘s perhaps one
or two days a week and advise them, and perhaps do some cataloguing - that
sort of thing; but I wasn‘t working full-time. And then, when I got the degree,
I then went to Oxford and did a thesis
on Indian art. And when I got to Oxford, then I began to be part of the Oxford
medical, you know, establishment, in that I... that was the time when I could
start to find a full-time hospital and doctor to look after me, and I started
to do that in Oxford. During the time when I was at SOAS, and
when I was really in London - but
also partly… we had a little cottage in Suffolk - it was about that time that I began gradually to cease going
to Dr Nabarro. I can‘t exactly give you a date for when it happened, but
I think it probably happened when I was really no longer in London, and this really was when I was studying at SOAS. I used to
live in Suffolk and come up every day, and it was no longer
very easy to go to Nabarro. I went to him perhaps once or twice then, and
whether it was that I left him or whether he retired or... I don‘t know exactly
how it happened, but it was about then that I stopped going to him. Perhaps
I should go back quickly to say about the dreaded injections. Of course,
for a lot of
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my early time I was only doing one a day, and it was definitely Dr Nabarro
who said "well, at your age, you need to have two", and so I started
to have one at breakfast and one in the evening. And that was, I suppose,
what I‘ve done for most of my life, until a year or so ago, when I started
having Lantus at night and the quick acting insulin before meals, which, as
you know, is the most wonderful, wonderful way of doing it, because you‘re
just like a normal person - you‘re having the insulin when you need it. But,
for a very long time, we had these two insulins... two injections a day, and
for a very long time, also, they still were rather blunt instruments, in that
they were rather slow. Very slowly they got better, but my impression is
that it‘s only really in the last five years that they‘ve become razor sharp
instruments for dealing with any kind of blood sugar problem that you‘ve got.
But anyway, going right back to... it was Nabarro who got me on to two injections
a day, and the cortisone as well. And apart from the fact that I still had
to sit down and psych myself up to pull the trigger, I was... you know, that
was how I lived, and I was very well on that. Of course, not always well,
but the periods of not being well… you know, when people ask me "when
did you last have a coma?", I remember having a very bad attack in Oxford
when my son - my son was born in ‘75 - when he was very young, perhaps, you
know, ‘76 or 7. That was really when I last remember it. I think the answer
to this is that I‘m a fanatical tester - I am always testing. And I‘ll always
know when something‘s going to happen before it happens, really, so, you know,
I don‘t allow things to go wrong, and I‘ve been lucky they don‘t go wrong.
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You‘ve mentioned RD Lawrence and Dr Nabarro. Do you have any other memories
of the medical profession before you moved to Oxford?
Well, of course, I was constantly
in touch with people, and going to big hospitals meant that you certainly
did meet them. And, of course, I was in hospital, actually, once or twice,
you know, to do with Addison‘s, but also for one or two other reasons I had to go into hospital.
I mean, the times, for instance, when I had to have my wisdom teeth out, you
know, that, so… But there wasn‘t any traumatic business with that, you know.
You were with people who... in hospital, really, you‘re with people who know
about it. I mean, I think if there‘s ever going to be any trouble, it‘s going
to be with GPs, whose job isn‘t to know everything about. They know a little
bit, and if there‘s a problem they send you off to a specialist. And so,
when, you know, occasionally, when you‘d have a very busy GP, and there was…
you know, the waiting room was absolutely stuffed with people, and finally
you see this poor harassed doctor about something quite different. And it
was a woman, I remember, in London,
who looked up the notes and said "oh, well, you‘ve got diabetes and Addison‘s, you know, probably you‘ll have other things going wrong".
And I don‘t remember her exact words, but, you know, that‘s the sort of thing
which doctors perhaps shouldn‘t say, but perhaps they do say it. And I remember
that, you know. And, as it happens, nothing else has gone wrong, but it may
have been true. But you just remember those pinnacles of bad things that
stuck in your brain. But, on the whole, I don‘t remember anything very bad,
and I just remember a lot of kindness and understanding, and the understanding
has grown over the years. And indeed, even going back to people like Miss
Pearce, who was very tough and certainly stuck that thing in my ear. They
were always very kind as well and understanding, and they gave you the best
they could in their knowledge; the knowledge which has grown and grown, which,
you know, perhaps a long time ago that wasn‘t so great, but it kept me alive.
Tell me then about moving to
Oxford. When was it?
Well, I‘ve always been rather
law abiding, and when I started to do this thesis, I read the instructions,
which said that I had to live within fourteen miles of Oxford, and that was in 1976. I now discover that,
of course, it‘s completely untrue and you could live the other side of the
world if you want. But we had our little cottage in Suffolk, and we sold it and we moved into East
Oxford, just by the Iffley Road. And that meant finding, you know,
a new environment, which, as you know, actually, couldn‘t have been better.
I mean, the hospitals for... the treatment of diabetics in hospital in Oxford
has been wonderful. But this started in ‘72, and meant.... sorry, I meant
1976, and, of course, I can‘t quite remember exactly when it started... which
hospital, but what I do remember that, as usual with me, I quickly found out...
first of all I got a GP, and then from that found my way into the hospitals,
because I believe in going twice a year, and I started that very quickly.
And I think, at the beginning, it must have been in the Radcliffe Infirmary,
although my mind is slightly hazy about that, because I have been going to
the Radcliffe Infirmary recently. But I remember going up to the new JR too
and going there for quite a few years, and being looked after there very well.
But never, you know, for a long... I haven‘t been to hospital since I was
in London in the ‘60s, so I‘ve never been to hospital, but I have been,
you know, once or twice a year to see the doctors there.
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Now, you‘ve been under Oxford management,
as it were, ever since ‘76. Can we talk about the changes you‘ve seen in
that time, for example in injections?
Well, what we‘re talking about
now is the most amazing... actually quite simple changes, but changes which
have made the most enormous difference. And talking... I mean, the first
change, I suppose, was the change to... the change about the syringes, because
when I went to India, when Thomas was two
in about ‘77, I was still using glass syringes. And some time after that
- I can‘t tell you exactly when it was - it was the change to disposable syringes,
and that really wasn‘t such a huge change. I mean, in fact, it is a big change,
in that the old glass syringes had to be boiled and kept in surgical spirit,
and when you moved about they had to be put in a container with a surgical
spirit. But, I was so used to this, it wasn‘t really such a big deal dealing
with that. And when you change from that to these wonderful disposable syringes,
which you threw away, it was still a question of using the syringe, you know,
so that wasn‘t such a huge change. It did involve quite a bit of research,
in that the new disposable syringes would not go into the Palmer injector,
so I had to get a new gun to put the syringes into. And, actually, it was
very much better this gun. It was made in Germany, and the syringe actually goes into it
and it‘s entirely hidden, and you press a red button and it pushes the thing
in. I didn‘t mind seeing the syringe - I wasn‘t worried about that at all
- but I certainly was very pleased... in fact, for me it‘s been essential
to find some kind of instrument to do that, and I did. So, the syringes went
into that, and then there was the question of the blood tests. And I have
to admit that when I first heard about blood tests, I thought "oh, my
goodness, not another jab!", but, of course, by then I‘d had a lot of
little pricks
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in my finger, but the thought of doing it myself all the time was something
to ponder on a bit. Anyway, it was while I was there in the John Radcliffe
- and I can‘t tell you when it was, but it must be fifteen years ago, perhaps
- perhaps something like that, anyway; more than ten and less than five, I
would guess. And I came back with my first blood tester, and I learnt two
things very quickly. One is that there‘s no pain involved - it‘s not traumatic
in that way - and the other thing was it enabled you to be in charge in the
most wonderful way. As before, you would keep records, you know, you‘d have
the charts and you‘d write down what you were at particular times, so that
you knew how things were. But, unlike before, you were actually recording
what you were, and I think the blood tester is really the thing that made
the biggest difference. And, for a long time, it was the absolutely accurate
blood test, coupled with the still somewhat blunt instrument of the insulin,
which was still one in the morning, one in the evening. And the thing which
had been with me all my life, which is really... which I had got used to,
but which is an incredible problem and hassle for people who live with diabetics,
which is the fact that they have to eat at certain times. And if they don‘t,
they get blue or irritable or, you know, or worse. And when you take your
insulin in the morning and evening, you‘ve got to have your elevenses, you’ve
got to have your lunch, and you have to fit your life round that. It‘s not
the other way round - that‘s how it is. Whereas, once you start to take the
Lantus at night and the quick acting injections when you eat, you then, for
the first time in your fifty odd years, can really put everything together
and live a proper life. Now, in my case, I have to say that I... it‘s such
a habit to feel that I need food at lunchtime, that I do feel I need that,
even when I don‘t. And I‘m still in the habit of... you know, I still feel
that. And the fact that, you know, say I go to work and I forget to take
my insulin, and
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it‘s easy. It‘s only happened twice, but it‘s easy - I just don‘t have a
meal. For a diabetic whose been a diabetic all his life to have to think
in that new way is really something new - I can‘t tell you - and wonderful.
It really is wonderful - you can do whatever you like.
You‘re talking about adjusting
the amounts of food around the insulin. Would you adjust the amounts of insulin
around the food?
Oh yes, of course; you do both.
You know, you know more or less what you‘ve got to eat, and when you start,
you‘ve been told how much insulin to take to... I mean, you talk to the nurse.
Actually, I haven‘t talked very much about nurses, since the one who looked
after me at prep school. But the nurse in Bicester is a diabetic herself,
so, like Dr Lawrence, she‘s talking about something she‘s got, and so she‘s
very enthusiastic about the new ways of dealing with it, and she‘s quite right.
And so she asked me how much I ate, and we went through it. Don‘t forget,
when you‘ve been... you‘re still thinking in portions and ten grams, and you
know exactly what you eat, and so I could tell her exactly what I ate, and
she told me exactly what I should have for insulin. And, with the help of
the hospital in Oxford and with my own help, I‘ve reduced it and
I‘ve got it right. But, it‘s really of taking the insulin you need. You
learn exactly what insulin you need for what you‘re going to eat. And because
you take blood tests, you know that if you‘ve eaten too much - you‘ve been
to a party and had too much - you take extra insulin to deal with it, and
it gets rid of the sugar. It‘s wonderful.
Can you remember when the nurse
in Bicester would have begun to teach you to take different amounts of insulin?
That is a difficult one to answer,
I‘m afraid. It must be about two years ago that I started on this new thing.
I could tell you a story behind that, which I think is amusing and interesting.
I was... I mean, you want to know why I started on this. I went to the GP,
and I said "oh, my son is using this new insulin and everything".
And the GP was very nice, said "well, I‘m not in favour of really changing
things if they‘re working, and with you it certainly is working. You know,
the thing you‘ve been using for ten years and more, it‘s working beautifully
- why change it?". But the lady who gives me the medicine said to me
"nearly everybody else has moved away from the phials of insulin, and
I think it won‘t be long before they stop making the phials, and maybe...",
you know, and she left.. she didn‘t finish the sentence. But I could see
what she meant, and I knew what it meant in my mind. There was no doubt that
I had to go over to using a pen, and using a pen meant getting over my fear
of needles - a fear which is still with me, of course. So, I thought "now,
what am I going to do about this?", and I thought…
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And I thought about this, and I thought to myself "there‘s only one way
to deal with this, and that is through going to a hypnotist". I‘d never
done such a thing before in my life, but I thought "this is the answer".
And so, I looked up in the Yellow Pages and I found a lady a couple of villages
away, and I went to her two or three times. And she went right back to the
beginning and talked about lots of things, and I think really failed to find
out why I had this fear. It was just part of me: being afraid of needles.
But what she certainly did do was to get me to the point where I could stick
the needle in. So, when I was given my first pen, I was able to stick it
in my stomach and do it, and I was able to do it quickly. I didn‘t sit there
five minutes - I did it. But now, the most amazing extraordinary thing happened,
which was that this wonderful nurse - who had never met anyone with my problem
before in her whole life, I‘m quite sure of that - said "I think we‘d
better do this change over in stages, and stage one is getting you used to
the new insulin. So, what you will do is you‘ll get the little glass phial
that goes in the pen, and you will use your syringe to get the insulin out
of the phial. And once we‘re sure that you‘re okay on the insulin, then you
can go ahead and use the pen". So, you can guess what this did to me.
This showed me that I didn‘t need to use the pen, so I went... but I thought
"I must use the pen", even though, in my mind, I now firmly knew
that I didn‘t have to. So, for, perhaps, two or three months, I used that
pen, and during those two months, all the good, which the hypnotist had done,
seeped away, and I was back to my fear and loathing of sticking it in. So,
I gave up. And I‘m using the new insulin: I‘m getting it in that new form,
but I‘m putting it in a disposable syringe and I‘m putting it into my little
gadget and I‘m sticking it in in the old way. But, I should say that I don‘t
spend time. I do four or five injections a day - I just put it on the skin
and press the trigger and it… that. But, I don‘t use the pen.
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Have you had any diabetic complications as the years have gone by?
No, thank goodness. I can tell
you absolutely that I‘m... I‘ve always been incredibly well. Once I‘d got
over that problem with the Addison‘s, I remember Dr Nabarro
saying to me, he said "this might be the best thing that‘s ever happened
to you, because it might mean that you won‘t have any problems of any kind".
And whether that was just a hunch he had, I don‘t know, but it was a very
kind thing to say, and it has been true. I think it‘s a question of... I
mean, I‘m a Christian - I believe God‘s looked after me, and he certainly
has. But, I think it‘s partly luck, or God looking after you, and partly
the fact that I‘ve looked after myself fanatically all the time. But, I also
know that people who do that are sometimes very ill, and the people who are
very bad about everything sometimes are very well, so, you know, it doesn‘t
necessarily happen. The only thing that has happened gradually is that...
of course, they look at your eyes twice a year, and my eyes are really well,
but slightly... there‘s slight sort of signs of damage in the eyes, but really
nothing. But what I‘m saying is, there is nothing wrong, and the only things
that are wrong are just those slight signs of having it for, you know, well
over fifty years. The one thing which is wrong is that in those early years,
when I was always unaware what was the matter, I used to eat a lot of sugar
- massive amount of sugar. And heaven knows, you know, that ought to have
done my body huge damage, but it didn‘t. Sometimes I needed it, and I‘m sure
sometimes I didn‘t really need it, and it had to wait for the insulin to deal
with it. And now I know a tiny little bit of sugar has a massive effect,
but, when I was young, I would eat great quantities of lumps of sugar. And
so, you can guess, that my teeth are probably the only thing that‘s gone wrong.
I‘ve lost masses of my teeth, and that is because of this blunt and ineffective
way - and perhaps unnecessary way - of dealing with the diabetes, in the days
when there were no proper ways of testing it.
And can you reflect on changes
that you‘ve seen in the Health Service since you came to Oxford?
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Well, let me try and answer that in a roundabout way. It‘s actually quite
a long time, isn‘t it? - it‘s about thirty years. And at one stage in that
time, when I belonged to BUPA - which I don‘t belong to now - I went... for
a short time I had private... I actually went to see the big man in charge
of everything privately. And that was wonderful, because, in a way, it was
like going back to see Dr Nabarro, who, incidentally, I saw on the National
Health. There was no private... nothing private about Nabarro. But this
was actually seeing a man for half an hour or three quarters of an hour, at
a time when I chose, you know, with agreement with him, and not having to
queue or anything like that. And that was quite marvellous, in a way. But
it didn‘t really make any difference to the treatment, and the normal treatment
is, you know, going to the place and waiting. And now, as you know, in Oxford, it‘s a new hospital - new clinic - marvellous new clinic, and
I go there once a year; only once a year. And I wait, and I see not always
the same doctor, but that doesn‘t matter, because they all have my notes,
and I know most of them by now and they all know about the problems, so it
doesn‘t matter seeing a different man at all. The only thing about it, which
needless to say is to do with needles yet again, but not really due to fear
of needles, is the fact that I have very thin arms. And as the years have
gone by, my arms have become more and more unwilling to have the blood taken
out of them, and so this has been sometimes difficult, and I‘ve had to find
ways of doing this. And my way of dealing with this, actually, is to go to
Montgomery House in Bicester before, where there‘s a very nice woman who knows
about my arms, and knows that she can only get the blood... probably only
get it from the top of my hand. But, I mean, even that, now, doesn‘t hurt,
because it‘s a tiny, weeny little needle, which goes on the top of your hand,
and the blood comes out. But blood testing has been a gradually more difficult
thing for me, simply because it‘s hard to find the vein. And it‘s quite amazing
how some people are better than others. There‘s one GP at Bicester who just
gets the vein, and can get the vein… you know, the vein, which is apparently
useless, he can get blood out of it, whereas other people can‘t. But that‘s
just a side issue, that.
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Dealing, really, with people and going to clinics and all that - for me it
was something I was used to, and I hardly noticed the changes. But my son
Thomas, who was born in ‘75 - when he was five, he got diabetes, and so we
had... my wife and I had this double thing. And, of course, for her it was
not a double thing at all. It was single-mindedly a thing of looking after
Thomas. But for me it was a double thing of looking after myself and Thomas,
and of going to clinics, and… for both of us, but obviously quite separately.
And with Thomas it was wonderful, because there was a most marvellous lady,
a lady nurse in Oxford, who looked after the young children when they got diabetes,
and, of course, their parents, and got them on track. And she was called
Sally and she had a little Renault 4, and she used to come any time of the
day and night. And I don‘t know how many of us there were, but I suspect
she was looking after, you know, maybe fifty or a hundred of us, but she was
always there, and she helped with Thomas. And I‘m glad to tell you that Thomas
doesn‘t have fear of injections. You wouldn‘t know he was a diabetic. He
uses a pen. He doesn‘t spend ages keeping records and, you know, this full-time
job that I do. He is just a normal person with a big job, and you‘d never
know he was a diabetic. But, of course, as he grew up he did have problems,
which more or less highlight the sort of problems which all of us have. I
mean, my wife and I remember very clearly the time we went to stay with my
aunt in Wiltshire. And I went out and got a Chinese meal, and we brought
it back and we all ate it, and poor Thomas was very sick in the night. We
weren‘t, but he was. And we got the GP in, and the GP‘s knowledge of diabetes
was not wonderful, I don‘t think, but it may be that he thought that since
Oxford wasn‘t that far away we ought
to take Thomas back anyway. So, we drove Thomas back from Wiltshire to...
and we took him into the John Radcliffe. And poor little boy, he spent the
night in hospital. And during that time, there was a nurse who tried to get
blood… who tried to put a drip into his arm, and instead of putting it into
the vein where
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it should have been, she put it into this… under the skin, but not in the
vein. So, he had this pain of this stuff going into his arm, but not into
the vein, or at least it may have been doing the opposite - it may have been
testing his blood. But, whatever it was, it was very painful. And that is
the sort of thing you have as a diabetic. You know, I can‘t really remember
bad times like that for myself, but we all have that now and again, because
we meet so many people looking after us. And some of them don‘t know what
we know, and some of them aren‘t as good at it as we are, and that sort of
thing happens. And we… of course, with schools, you then come across that
ignorance again, which may have happened... I mean, my prep school had a nurse,
and my public school, you know, I was with a nurse. But Thomas, being so
well and fit and well adjusted and on modern insulin, he was a boarder actually
in a normal school, and he wasn‘t the only diabetic. Now, wherever you go,
there are other diabetics. But still you come across the ignorance. At his
prep school, the idea was firmly fixed in the mind of the authorities that
for diabetics, you can‘t have sweet things. They didn‘t understand or work
out or think that actually diabetics do need sweet things, so poor Thomas
got into trouble for having sweets under his pillow, which he had to have.
And so, when he went to the next school, the next school was told that Thomas
was somebody who wasn‘t a good boy, who had sweets under his pillow and who
broke the rules. And you have to be on the look out, as a parent, to defend
your child, and to educate people who don‘t know about it. And, I suppose,
that‘s most of us: don‘t know about it.
Can you reflect on how your life
might have been different if you hadn‘t been diabetic?
My goodness; that is a question!
I have to tell you that diabetes is my life. I mean, it‘s just... I mean,
people say "what…"… people don‘t say "what is your hobby?",
but diabetes is my hobby. I just love it and I love knowing more about it
than anyone else. Without it, I... well, I might not have been all that different.
I mean… well, my career - I can‘t imagine that my career would have been all
that different. I mean, I am a librarian, and I remember my brother telling
my parents "oh, I think he‘s going to be a librarian"!
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Because, when I was a little boy, I used to love reading - I read everything,
you know. And I suspect that the fact that I was shy and I was bullied, and
I was small and weedy, was not necessarily to do with diabetes. It was I
was an only child of much older parents; I didn‘t have brothers and sisters
- although I had half brothers and sisters - but I didn‘t have brothers and
sisters around about to knock me into place and to see that I wasn‘t spoilt.
So, of course, I was myself, quite apart from the diabetes, actually, and
I don‘t know that I would have been very different.
Has diabetes affected your family
life?
Well, for that you have to talk
to the family, but I think the answer... and I‘ve been very happily married,
and I‘m very happily married. My wife and I, you know, we love each other,
and we‘ve been married for a long time, we‘ve got two children. But living
with a diabetic is not easy, actually, because, talking to me, you‘d think
that everything was wonderful, you know. But, why are we always taking extra
insulin? Why are we always doing tests? The reason for that is that everything
we eat has an effect on us, and we do go up and down. Our blood sugar goes
up and down, and when that happens our moods go up and down. And diabetes
can make you irritable and make you bad tempered, it can make you sort of
sullen and introverted. It does have an effect on your behaviour, and conversely,
you can be strangely crazily happy, because of your blood sugar, you know;
it‘s all that. So, the answer is, you know, my wife has had periods when
- probably every week, I don‘t know - when I‘m, you know, irritable. But
I hope that that is easier, and it‘s easier to control now, you know. I mean,
there was a time when it was impossible to control. I mean, when I was young
in London - and I might say I enjoyed myself. I had
money, I had a car, I went out at night. I used to do most things other people
did - but you always had this thing of not knowing how you were, and having
to eat lumps of sugar, and I‘m sure being crazy because you weren‘t well,
you know.
What keeps you going in life,
as a diabetic?
Well, as a diabetic, I don‘t
know. For me, diabetes and life are the same - they‘re absolutely connected.
What keeps me going in life is that I just love life. I love my job, I love
my family, and I have to say something, which I don‘t know whether I alluded
to very much before, which is that one enormous luck that I had was my faith.
I mean, my father was an old man, but I remember him kneeling at the bed and
saying his prayers, and his mother, who was a fearsome old lady who I never
knew, she‘d taught him to do that. And I‘m not as good as he is at that,
but faith has always been an immense help to me. And my wife… I was Anglican
then, my wife was a Catholic, and I became a Catholic. And for me, I don‘t
know how anyone could live without faith. I mean, absolutely, God looks after
me, and everyone else, of course. So, I attribute the fact that I‘m so well
to that, actually, and I‘m very happy, thank goodness - thank God! Very happy.
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