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|01 Born 1954, London. Girl at primary had diabetes, & I met her after my diagnosis. School nurse said I should go to doctor.|
|02 Went to GP, then Great Ormond Street, in 1967, aged 12, for 6 weeks. Trained to do injections, count portions & test urine.|
|03 Urine testing. Wicked not to keep to strict regime. Measuring food.|
|04 Still have affection for Gt. Ormond St.|
Deliberate hypo – useful training.
|05 I was empowered by training, but mother uncomfortable. |
At school, played on illness, and school suggested I leave. At 15 went for year to Quaker boarding school.
|06 They didn’t take notice of diabetes – that helped. Did O Levels, then returned to London. A Levels at FE college. |
At 17, went to Gt Ormond St with tooth abscess. Then moved to Middlesex Hospital. Sad to leave Gt Ormond St. (I sometimes made up test results!)
|07 Got to know Dr. Newnes & staff at Gt Ormond St. |
At FE college, they didn’t know I had diabetes. I became independent & methodical.
|08 After diagnosis, parents felt guilty. Discovered relative died of “wasting disease”. |
After FE college, took Diploma in Fine & Decorative Arts. Worked in bookshop, met husband, then worked at Tate for 9 years.
Diabetes no problem until stomach bug led to intensive care at St. Stephen’s Hospital in early ‘80s.
|09 Hospital changed insulin & talked re diet. I became more interested.|
|10 Changed to 4 injections at King’s Hospital, when pregnant in ’85. |
Had married in ’78. Husband coped well with diabetes.
|11 Glucose level of 6 during pregnancy. Pregnancy went well. King’s staff excellent, & were disappointed I had caesarean, as I was one of first to go 40 weeks.|
|12 Hospital aftercare good. Went back to work full-time, then got part-time job with company that bought art for corporations.|
|13 In ’87, father & brother died. Husband held up with gun. Moved to Oxford & John Radcliffe Hospital. Then moved to Radcliffe Infirmary – less waiting. Went on human insulin, had problems, returned to porcine – in late 80s. (Now on human again.)|
|14 Became pregnant 1989. “Silver Star” care at JR not as advanced as care at King’s.Knew she was a girl.|
|15 Pregnancy more difficult because of “lows”. Obstetricians insisted on induction at 38 weeks, so I chose caesarian.|
|16 Daughter born 1990, weighing 5 pounds. |
Ran business with mother for 4 years.
Worked in Oxford colleges.
Daughter developed diabetes in 1999 & college reluctant to give time off, so I left. Daughter was 9 – great shock.
|17 Went to see geneticist for explanation. |
Daughter had 2 nights in JR children’s ward.
|18 Consultant assumed I could cope. I wept. Diabetic nurse helpful. Daughter should have had a week in hospital. |
Her school wonderful.
|19 Her school coped much better than mine. But she had less training in hospital. She rebelled over injections until she did them herself.|
|20 There’s more information about now. Her regime is more flexible than mine was. She’s on Lantus & Lispro.|
|21 Last year I changed to Lantus and NovoRapid. Now easier to handle diabetes. I don’t hide my diabetes as I used to.|
|22 Daughter injects in public; I go to loo! |
Recent publicity about type 2 leads to wrong assumptions about people with type 1.
|23 Daughter relates to medical staff through me. I should stand back more. |
I handle diabetes fine, but hard to see effects on daughter.
|24 Thinks have improved greatly for diabetics recently. For me “like brushing teeth”.|
|25 In 1968 or 9 I was told I couldn’t have children, but I have 2. |
Being diabetic less solitary now. When I was diagnosed, I hid it: now daughter not ashamed.