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01 Born 1942, poor family, rural area. Older brother fighting in war. Father worked for council. Wartime rationing. Weekly bus to town. | |
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02 Mars bar lasted 5 days! Village school, then secondary modern school, then day-release course. Diagnosed at 13 after accident. Mum read “Home Doctor”, called GP, sent to hospital 18 miles away. Recently consultant said accident only part cause. No diabetes in family. | |
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03 Prospect Park Hospital, Reading. Frightened by display of ancient syringes! Men in ward friendly. Glass syringes & Clinitest. Told I must control diabetes, not let it control me. | |
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04 Detailed diet. Carried sugar. Taught to sterilise syringe & needles. Zinc Lente insulin injected in leg… | |
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05 …easier than arm because of length of needle & syringe. Memories of Clinitest. Mother sterilised & controlled diet… | |
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06 …used saccharin. Diabetes rare, but family adjusted. Hospital gave scales, but soon judged food by sight. Adjusted insulin to enable sports… | |
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07 Royal Berks Hospital, Reading, increased insulin as grew older. Didn’t adjust insulin day to day. People at school unaware of diabetes. | |
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08 Teachers knew, others didn’t. Closest friends told to give sweet or sugar. Lots of sport. Never unconscious at school. | |
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09 First hypo 5 years ago. Always had warning signs. Only missed school for check-ups. Left school at 15 to work in furniture factory. Stayed for 6 months. | |
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10 Long hours difficult, so moved to furniture shop. In factory, told people re sugar. In shop job, bought chocolate for energy when delivering furniture. People didn’t understand effect delayed. | |
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11 Did sports. Careful re alcohol. Played darts. Moved to work in department store. Friends puzzled when stopped cycling to take sugar. Girlfriend’s parents tried to end relationship because of diabetes. | |
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12 Married at 26. Still working in department store. Holidays in caravan. Once had to return because forgot needles & no chemist open on Sunday. | |
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13 Divorced in early 30s. Living alone hard with diabetes. Re-married. Went blind & gave up job as sign-writer. Wife couldn’t cope & left. Alone again. Eye problem began Christmas 1977. Went to optician at hospital clinic. | |
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14 Lost sight quickly. 1st marriage not affected by diabetes: she preferred someone else. 2nd marriage ended 1982. 3rd wife blind also – met through blind club. I’d started garden furniture business & made sandpit for her son. Husband having affair & they divorced. We both work at home. | |
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15 Went on RNIB woodwork course. Make garden seats etc. Earn enough. Exhibit locally. Job satisfaction. | |
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16 Make seats as prizes for White Cane Award. Work featured in media. Social services phone re helping other blind people. Laser treatment new when lost sight . Went to Moorfields & St. Barts. | |
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17 Nothing they could do. Someone at Hammersmith referred me to Radcliffe, end 1978. Changed insulin. Experimental NovoPen & talking blood test machine gave independence, 1988/9. (With old disposable syringes, needed nurse to inject & couldn’t travel.) | |
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18 Experimental operation to drain eye, Oxford Eye Hospital, c.1990: worked for while, then artificial eye. About 4 years ago, blister on toe treated at local hospital. Referred to Radcliffe. Had turned into ulcer… | |
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19 …MRSA. Toe amputated. In hospital 8 weeks for MRSA. Problems with feet since. | |
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20 Take care. Money put into NHS doesn’t show on wards. Staff work longer hours. Outpatients busier. Never see same person. | |
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21 Long waits. Disadvantage of seeing different podiatrists. Diabetics didn’t like pork insulin but now adjusted. Old NovoPen clicked… | |
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22 new model harder for blind. Local Superdrug found alternative equipment. Mixtard insulin. | |
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23 Works well, but disposable plastic not so accurate as metal NovoPen. Urine test only at hospital. Talking blood test machine since 1988/9. | |
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24 More diet foods available. Hospital food good. Staff helpful over blindness. My own GP marvellous… | |
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25 …friendly. Takes blood pressure at home. Surgery friendly. In hospital, nurses helpful – give me own room; more caring since blind; more recent training to help blind people. | |
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26 Hotel for blind caters for diabetics. In cafes, diabetics use NovoPen before pudding. Occasionally imagine life without diabetes. Take syringe to outpatients, because sometimes admitted straightaway. Lucky: well-controlled until recently. People visit workshop… | |
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27 …more ill than me. Message: if you’re careful, can lead normal life. | |
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